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What If We Were Raised Differently?

A MyEpilepsyTeam Member asked a question 💭
Cedar Lake, IN

i wonder... if we were raised differently or had seizures earlyer/later in live... is that inpacted our lives?

December 10, 2023
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A MyEpilepsyTeam Member

Regarding whether my life would've changed if i was diagnosed later in life, I would say yes if I was to have developed epilepsy when I was 20 vs. 5.

Would my faith be where it is today, probably not as I wouldn't have gone through the struggles associated w/ my epilepsy that tested my faith & taught me that I have no control & God has total control. I was taught this in church, school & everywhere I went, but it's only when one has to put it into practice does it make an impact.
Would I still be who maintained the house, or would I be partying more & doing more w/ friends?
I would've been raised w/o many restrictions as my folks, who I love them dearly, restricted a great deal what I did outside the home due to fear I'd hurt myself or others. It was like parents these days who try to idiot proof a house so their child won't supposedly hurt themselves instead of letting them learn from experience when growing up learning there's consequences to actions, (ie. what it's like sticking a wet finger in a power outlet), needless to say I only did it twice. My EX was one such person, a person who didn't believe in discipline (consequence / actions), & didn't know how to raise him so she let him raise himself for the most part.

How i was raised, my morals, values, my character, lessons taught by those around me wouldn't change, well maybe a few. As I was raised in a conservative Christian environment (home, family, friends, teachers, community). So those values transferred to me.

December 16, 2023
A MyEpilepsyTeam Member

Having seizures earlier is only slightly different than today. Growing up with epilepsy in the early 60's is not very different than 2023. The only difference is that there are more medications available and more forums to attend. The remaining set back is the support for people with epilepsy in the 60's looks to be very little change in 2023. There is no support for people with controlled seizures to work full time and have a chance to have health care on our side. Instead, businesses will hire us part-time and not offer us the health care we need.

December 11, 2023
A MyEpilepsyTeam Member

I have worked full time since I was 17 just like any normal person. I never disclosed my epilepsy to my employer up until I got my current job in 2009 which required a complete physical prior to employment. I passed the physical because I was medicated and hadn’t had a seziure in four years. Also the seziure that was disclosed was do to my body no longer tolerating my meds. This was documented in my medical records which were reviewed by my employer and I was hired
That was 14 years ago

December 11, 2023
A MyEpilepsyTeam Member

I was raised differently enough. Growing up on a working farm I was expected to do everything, except driving on a highway, that I was expected to do prior to my first seizure. I drove tractors, lawnmowers, fork trucks, and farm use pickups everywhere on the farm. Every now and then I wanted my parents to act more concerned, but that is probably the biggest reason I am comfortable with my epilepsy.

December 11, 2023
A MyEpilepsyTeam Member

Yes it does impact your life. I’ve had Epilepsy since I was 12 I’m 51 now.
My neurologist at the time selected the proper medication for me. Except for labs to monitor my medication and regular follow up visits I grew up and have lived my life doing what normal people do.
I feel sorry for kids with Epilepsy now a days. The restrictions placed in them are ridiculous. All because doctors are undertrained, over worked, and afraid of lawyers that will open a law suit for anything and everything. It effects the parents too, because they become lifetime care takers

December 11, 2023

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