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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Many Seizures Have U Had In Ur Life? I Have Had 16 Seizures. My First One Was Back In 1994.

A MyEpilepsyTeam Member asked a question 💭
Marshalltown, IA

When I have a seizure I never know when there going to happen. I go stiff and shake. My family is always there for me overtime I've had one.

July 28
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A MyEpilepsyTeam Member

No idea. I’m drug resistant so I’m just going to say a ton.

July 28
A MyEpilepsyTeam Member

Susan Griffie,

When I was considering the surgery, I was told the risks included I could lose my memory, my whole right side could have been paralyzed or I could have been a vegetable. One of my biggest concerns was memory because I'm a musician and I played clarinet and saxophone in church and had a lot of the songs memorized. Before the surgery , a Wada test, which checks memory, was done, and they found I was missing 80% on the side they were operating on. I am currently getting back into playing at hymn sings at my church.

Hope you are doing well.

August 1
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A MyEpilepsyTeam Member

Wow uhm, I lost count of how many I've had over the years. What I do know is that my first seizure was when I was 6 years old and so on.

July 31
A MyEpilepsyTeam Member

I'm drug resistant also ,
So total control is out of reach for me also...

July 28
A MyEpilepsyTeam Member

Bill Cox, I have scar tissue on my brain
It is right smack in the middle of my head, on the left as well as the right. If that were to ever be touched with a knife, or whatever they use today, I would be a vegetable.

August 1

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