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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What Helps You Get Through Feelings Of Occasional Depression Over A Recent Seizure?

By A MyEpilepsyTeam Member 91 answers

Could You Share Any Dietary Changes And Tips That Have Helped With Epilepsy?

By A MyEpilepsyTeam Member 147 answers

What Aspects Of Epilepsy Are You Grateful For And Worried About Lately?

By A MyEpilepsyTeam Member 220 answers

Do You Notice That Singing Helps You Feel Better?

By A MyEpilepsyTeam Member 66 answers
12425 questions

Coffee

A MyEpilepsyTeam Member asked a question 💭
Newcastle upon Tyne, UK

I noticed that a lot of my epilepsy friends around the world, especially in the US, wake up to a strong coffee. Knowing this is a key trigger for seizures, why do you still drink it?

A MyEpilepsyTeam Member

I drank Pepsi first thing in the morning Never have had a problem

June 21

How Many Of You That Have Epilepsy Cannot Work, Been Laid Off Due To Your Condition, Limited In Your Job As A Result Of Drugs Or Condition?

A MyEpilepsyTeam Member asked a question 💭
San Francisco, CA

I am researching the effects of epilepsy in the workplace and am wondering how it applies to everyone with the disability. I know some are receiving SSI disability and also want to know for those that are receiving, would you go back to the 'regular' work environment, use as a supplement or not at all. Also how many people would work for lesser pay if you were laid off or released from your prior job
What type of jobs do you have or had
Was your employer/co-workers sympathetic to your… read more

A MyEpilepsyTeam Member

I was completely honest with with my employer! And that was when all my trouble started. When I disclosed to them that I had epilepsy is when they started to tell me little details about my work that… read more

September 29

What's A Common Misconception About Epilepsy?

A MyEpilepsyTeam Member asked a question 💭
San Francisco, CA
A MyEpilepsyTeam Member

I do exactly the same thing, Debbie. I'm retired and don't carry a phone everywhere I go. So, I wear dog tags around my neck that gives all the information you stated. My medical bracelet shows I… read more

October 12

Anybody Have Trouble With Remembering Instructions, Directions Or List Of Things To Do More Than Three? Does It Make You Frustrated?

A MyEpilepsyTeam Member asked a question 💭
Murfreesboro, TN
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member ditto ditto lol 😂

July 8

What's Are You All Thankful For? For Me I Am Thankful For You All And My Family And Friends And Of Course The Chiefs

A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

An attitude of gratitude is always the best way to look at things

May 7

Does Your Engagement With Social Media Affect Your Epilepsy?

A MyEpilepsyTeam Member asked a question 💭
Saint Louis, MO

Yes! I left FB and all the rest of them in the dust. This is my only online place where I participate.

A MyEpilepsyTeam Member

not really except for sleep sometimes i have to weed out some of the social media sites i am even on

January 29

Just Asking

A MyEpilepsyTeam Member asked a question 💭
Pittsboro, NC

What is everyone doing for Epilepsy Awareness Month? I have my bracelet, pin, and shirt that says “Epilepsy, shaken, not stirred”.

A MyEpilepsyTeam Member

Love it!!

November 14, 2023

What’s The One Thing That's Helped You Most With Fatigue?

A MyEpilepsyTeam Member asked a question 💭
San Francisco, CA
A MyEpilepsyTeam Member

For me the biggest help with fatigue is diet(eating right) and being in tune with the circadian rhythm - when the sun first rises for the first couple minutes, the light it emits is slightly… read more

December 27, 2023

What Do You Feel Has Been Or Is Your Greatest Obstacle Living With Epilepsy?

A MyEpilepsyTeam Member asked a question 💭
Chattanooga, TN

What do you think that could be made available to you that would help you better?

A MyEpilepsyTeam Member

Eating and getting out.

March 24

About Flashback Problem

A MyEpilepsyTeam Member asked a question 💭
Maspeth, NY

I went out yesterday purposely and I'm happy again! I can't wait for this weekend! I'm going to finally do open mic again! Last time was 2020 and I blocked him. I spoke a little ruff to him first

A MyEpilepsyTeam Member

I suffer from deja Vu during my aurad

July 22, 2023
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