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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 search results for "Topamax" in Q&A. To see all results and access other features, sign up for free.

Topomax - Need Information.

A MyEpilepsyTeam Member asked a question đź’­
Northport, NY

I’ve read that there are a lot of people on Topomax. Can I get some feedback on how it is? Word finding? Stuttering ?

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A MyEpilepsyTeam Member

I took topamax when I was younger. I don’t remember it having any side effect problems when I took it. But unfortunately it just did not work for me, so I had to continue to try and find other… read more

Was Anyone On Topamax During Pregnancy?

A MyEpilepsyTeam Member asked a question đź’­
Melbourne, AU

My specialist has said I can now try for a baby! But i have a few risks cause I’m on 3 medication. 2 are safe but he says the topamax can be a risk...

A MyEpilepsyTeam Member

I had taken Topamax durring my pregnancy. Was fallowed closely by medical specialists for a “high risk pregnancy”. My child was born at 28 weeks with a severely low birth weight. The last few weeks… read more

To

A MyEpilepsyTeam Member asked a question đź’­
Brisbane, AU

Hi guys,
I'm not on any medication at the moment for my tonic clonic and grand mal seizures.
I'm wanting to speak to my Dr about maybe starting Topomax.
Has anyone been on it? Any side effects? Does it help stop seizures?
Did you take topomax in conjunction with other seizure meds or on it's own?
Thanks heaps.

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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member I don't know of anyone on this but having said that there are a lot of people that are still on one old drug and one modern drug because it works. I was on Tegretol & Topamax… read more

Brand V Generic Topiramate

A MyEpilepsyTeam Member asked a question đź’­
Brisbane, AU

Does anyone know why Generic Topiramate tablets are smaller than the brand version even though it's the same dosage? I haven't had any issues or anything I was just wondering why this is. Currently I'm in the process of changing from Topamax to Apotex generic Topiramate.

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A MyEpilepsyTeam Member

I changed to generic back when I was on this med and I seized so much they had put me back on brand name
I recently was taken off Topamax(which worked well) and am on Lamictal now and it also works… read more

I Started Topamax Yesterday And I Am Starting To Ween Off My Keppra. Can Anyone Share Their Experience With Topamax, Good, Bad...

A MyEpilepsyTeam Member asked a question đź’­
Murrells Inlet, SC
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member:. Topomax is terrible! I'm glad that I've outlived anticonvulsants.

Is Anyone Just Taking Topamax?

A MyEpilepsyTeam Member asked a question đź’­
New Jersey, NJ

Hi everyone,.
Went to my Neuro yesterday. I will be stopping Vimpat 100mg BID and starting maybe Topamax.

Vimpat isn't controlling my seizures. I started it a few weeks ago and I already gained 10lbs and loosing my hair like crazy. Which sucks because I just lost my baby weight from pregnancy and started growing my hair back from breastfeeding

Anyway, what are your experiences with Topamaz? Going to be on 50mg BID

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A MyEpilepsyTeam Member

Kindra it was just an added bonus, you lose a few extra pounds in the beginning it doesn't continue dang it. But it does keep my migraines down. The only time I get them now is after a bad seizure.

Kidney Stones

A MyEpilepsyTeam Member asked a question đź’­
Holyoke, MA

I’m having a bout with kidney stones. It’s a side affect of topomax and zonimiside. I’ve 1 but I found iut there are a bunch just hanging there waiting to drop. Not looking forward to that. Anyone on these meds have the same issues

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A MyEpilepsyTeam Member

I agree with you and your post and the other people's posts here, I think it's dif per person, but t have had a kidney stone and don't know if was my meds that caused it, the doc who said I had one… read more

Topiramate

A MyEpilepsyTeam Member asked a question đź’­
Timaru, NZ

I've tried a few meds, been taking lamotrigine & lacosomide for years with no joy, still have several seizures a month. Neurologist prescribed topiramate today. Does anyone take it? Any side effects? Any success?

A MyEpilepsyTeam Member

Hi
I started topiramate a few months back and at first thought "This isn't bad. Only on the increase I get some side effects" then once I'd got to the dose my neurologist wanted me on which is only… read more

Medication

A MyEpilepsyTeam Member asked a question đź’­
Cessnock, AU

I have been taking lamictal since the beginning of August (took 3months to slowly change from topamax)
I have had absence seizures for as long as I can remember but I have not had a convulsive seizure since I was 6
Until now
I have had 2 in the last 4 months. There are no definite triggers or reasons behind them the just happen without warning.
Does anyone think it is the medication? If it is it's not only not helping my seizures but it is making them drastically worse. I am just not… read more

A MyEpilepsyTeam Member

Some of the medicines you are taking my not agree with you just keep trying new ones till they do, I did with success after about a year.

My 4 Year Old Barely Eats When Taking His Medicine. Any Suggestions?

A MyEpilepsyTeam Member asked a question đź’­
Erie, PA

My son never misses his medicine. But he will get days where he doesn't want to eat and he becomes very weak. He falls a lot and can't hold anything. He has been having seizures daily lately. Can anyone help with suggestions?

A MyEpilepsyTeam Member

It's only on this site that I've seen it used for epilepsy. People I know Take it for severe and debilitating migraine. My son was trialled on it for that reason to reduce appetite as very overweight… read more