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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 search results for "Zonisade" in Q&A. To see all results and access other features, sign up for free.

Just Started Zonisamide.

A MyEpilepsyTeam Member asked a question 💭
Pittsboro, NC

I just started taking zonisamide yesterday. It is in addition to phenobarbital and lamotrigine. If you have had experience with zonisamide, please let me know, especially if it is a secondary or tertiary medication. I am also interested in side effects.

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A MyEpilepsyTeam Member

phenobarbital is an old friend growing up. the last 19 years have been zonimade, Kepra. and Depakeen. It has kept me stable. Zonimade I feel is a good drug it has worked well for me. Take care Mary… read more

Zonisamide

A MyEpilepsyTeam Member asked a question 💭
Shanklin, UK

Have anyone taken this medicine or is on it.
What are side effects and how did you cope with it. Does the med work. Any information.
I'm on epilm at the moment but Zonisamide is slowly being added at the same time I'm slowly coming off eplim, so I'm having change over of med and wondered how it will effect me.
It have been making me very tired.
How is what I'm taking at the moment.
Morning... 600mg epilm & 50mg Zonisamide
Afternoon... 300mg epilm
Evening... 600mg epilm & 50mg Zonisamide

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A MyEpilepsyTeam Member

I like being on Zonisamide!

I Stayed In The EMU For A Week. The Result Is Stopping Zonisamide And Starting Briviact. What Are Your Thoughts On Briviact?

A MyEpilepsyTeam Member asked a question 💭
York Haven, PA

How was your experience after the EMU?

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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member, you may want to ask your doctor about removing yourself from Depakote. The reason why is because the drug will create liver damage in six months. I took it for a year, and it… read more

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Are You Ok With The Meds You Take, Or Dose That Go With The Meds You Are Currently On?

A MyEpilepsyTeam Member asked a question 💭
Englewood, CO
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A MyEpilepsyTeam Member

I take phenobarbital and Lamictal and have not had any problems with either. I can take them both at night so that helps. My side effects are I get a bit sleepy when doses are increased. Luckily no… read more

Controlled Until 2014 When Toxic Encephilopathy Resulted In Grand Map Seizure And Double Vision.

A MyEpilepsyTeam Member asked a question 💭
Scottsdale, AZ

Tried many anti seizure meds and they only differ in intensity and duration, frequency fairly constant-when trying to nap in afternoon or starting with drowsiness 8-9 pm. Frequently awake with recurring seizures (my doc calls them episodes since I don't lose consciousness. A few puffs of medical marijuana allows me to return to sleep without fear of more seizures. Now trying Aptiom (sp?) after Dilantin, oxcarbazapene, carbazapene, kepra, lamictol, etc., etc.

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A MyEpilepsyTeam Member

I wonder if he would put me on Dilantin if it would also help my weight issue

Does Anyone Else Take Zonisamide (zonegran) ?

A MyEpilepsyTeam Member asked a question 💭
Tampa, FL

I know nothing of it and neither does my mom. Shes never heard of it. It was created or found after she stopped taking meds. The doctors only told me the usual side effects that come with medicine, dizzy, nausea, drowsiness. Anything i need to worry about?

A MyEpilepsyTeam Member

I take Zonisamide. Keeps My weight down too! As far as memory loss, it could be from the Vimpat I take.

Zonesimide And Anxiety

A MyEpilepsyTeam Member asked a question 💭
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A MyEpilepsyTeam Member

I agree with you and your post and the epilepsy team post, I think it's dif per person, but hang in there and try and stay pos

Has Anyone Been On The Meds Listed Below? Has Anyone Had Many Side Effects?

A MyEpilepsyTeam Member asked a question 💭
Barnsley, UK

So my medication is getting changed because of my liver, I was wondering if anyone had been on any of these? Lacosamide Zonisanude Perampanel Topiranate I want to know what kind of mood changes everyone has had and side effects? One of these is going to be the next one I’m on and I don’t want to choose another one that makes aggressive or anything, thank you in advance!

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A MyEpilepsyTeam Member

I try not to take anything. But find I have too or wake up in hospitals

New Medication

A MyEpilepsyTeam Member asked a question 💭
West Chicago, IL

So much has happened i need to vent .

So on September 11th i had to be admitted bc i had a fall in the shower , while rinsing with NO aura NO warning nothing and cut my right eye bruised it just terrible . ( i had been stressing but didn’t think much of it). stitches on side of my eye bruised and was admitted for (5) days. had a CT scan and EEG done. Seizures were happening , but they could not tell why, or from where. (part of the brain) Now these are the type of seizures where i need to spit… read more

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A MyEpilepsyTeam Member

ok, i don't take those meds cause everybody is different... therefore the med treatment is different
as for the ink eeg, do not be afraid of missing the dose. you will be in the hosptial... with… read more

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Acupuncture

A MyEpilepsyTeam Member asked a question 💭
Orlando, FL

Has anyone ever tried acupuncture to help with seizures? No medicine is working and my mother thought acupuncture might be a good thing to try

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A MyEpilepsyTeam Member

I have seen an acupuncturist /Holistic doctor for quite a few years now. He helps with overall health and is good for the side effects of the anti seizure meds. He has also been a help for my… read more