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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

What Aspects Of Epilepsy Are You Grateful For And Worried About Lately?

By A MyEpilepsyTeam Member 218 answers

Do You Follow A Specific Diet To Help With Epilepsy?

By A MyEpilepsyTeam Member 97 answers

What Lessons From Your Epilepsy Experience Are You Applying In 2024?

By A MyEpilepsyTeam Member 163 answers

How Does The Cold Affect Your Epilepsy?

By A MyEpilepsyTeam Member 184 answers
12506 questions

Anyone Have A Seizure From Colonoscopy Prep? I’m Very Nervous. I’m Not On Seizure Meds Because They Are Not Sure What Causes Mine.

A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Well were you on meds when you had the colonoscopy and what prep did they give you?

7 days ago

Due To Having Tinnitus Does It Get Worse If You Turn The Volume Up?

A MyEpilepsyTeam Member asked a question 💭
Deal, UK

My tinnitus does get louder when I turn the volume up on a TV, I can't use ear drops cause it sets off virtigo anyone else had this.

A MyEpilepsyTeam Member

One way I have found lowers tinnitus is by watching snooker its relaxing as well.

2 days ago

Does Anyone Have Good Advice For Frequent Partial/focal Seizures? My Memory Doesn't Want To Work

A MyEpilepsyTeam Member asked a question 💭
Elyria, OH
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
I’m over 40 years and I’ve lived with my parents all my life. There’s no way I could live a life by myself either. Thank God my parents are still alive. I have focal onset… read more

November 13 (edited)

Has Anyone Had Masses In Their Brain That Are Called Anything Of A Malformation I Have 3 Cavernous Malformations There Avm. Thank You ,kain

A MyEpilepsyTeam Member asked a question 💭
Jacksonville Beach, FL
A MyEpilepsyTeam Member

I was born with a brain AVM. It bled in 1989 then ruptured and bled in 2017. Drs told me that it was too big to be removed. So they just watched it. I had regular MRIs I think yearly, sometimes 2x a… read more

November 12 (edited)
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I'm Going In For A Week Long EEG Hospital Stay -no Date Yet-to Figure Out What Is Going On, But I Was Wondering What Should I Bring Or Not

A MyEpilepsyTeam Member asked a question 💭
Portland, OR

So I was originally diagnosed with tonic emplipsy but the head of the neurology department told her ( after 4 years) he believes I was diagnosed incorrectly so he wants me to come in to have a week long EEG to figure out what is going on,

I get very nervous and anxious when having to wait for anything more than just a DR appointment ( although I've definitely had times where I was very nervous and stressed with them)
So it's not that I don't like Drs or hi hospitals or even am worried about the… read more

A MyEpilepsyTeam Member

I didn’t bring any but I had to ask the nurse for earplugs. My parents were snoring loud.

November 10

Has Anyone Experienced Or Seen A Dramatic Change In Seizures?

A MyEpilepsyTeam Member asked a question 💭
El Paso, TX

My wife used to shake erratically between episodes of extreme tensing up of her whole body. However, within the last two weeks all throughout her “seizures” she looks unconscious, mumbling incoherently, and sitting up and looking awake. I try to talk to her and she’s still seizing. She goes from laying down one minute to sitting up, back-and-forth. I have to admit I’ve become very desensitized to her seizures until she started these new ones. Can anyone offer some insight or advice?

A MyEpilepsyTeam Member

Mary Perfect way to rid mind of any worry too. My Dr urges me to tell of any changes for best advice as well.

November 11

What Is The Best Way To Deal With Memory Loss From Epilepsy/medication?

A MyEpilepsyTeam Member asked a question 💭
Cleveland, OH
A MyEpilepsyTeam Member

I agree you and your post and the other people's posts here, I think it's dif per person, I take into consideration what the cause of it is in my life with and it's not something I let's say like and… read more

November 11

I Am Having A Great Deal Of Difficulty With Teeth -lots Of Dental Problems. Could It Be The Briviact?-I Never Had This Problem Before

A MyEpilepsyTeam Member asked a question 💭
La Verne, CA
A MyEpilepsyTeam Member

Hey, Sorry to hear that I had the same problem back in the day when I was taking Mysoline. In my teens. It swelled up my gums I just had to be extra vigilant and brush nore and gently. ericthom3… read more

5 days ago

Has Anyone Taken Xcpristart For Your Seizures? If So Did It Help You Stop Or Get Your Seizures Under Control.

A MyEpilepsyTeam Member asked a question 💭
Fayetteville, NC
A MyEpilepsyTeam Member

Unfortunately there is no information in the search results about Xcpristart specifically. However, there are a few key points about medications for seizures in general: The choice of medication… read more

November 9
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Anyone Have Non Epileptic Seizures?

A MyEpilepsyTeam Member asked a question 💭
Madison, AL
A MyEpilepsyTeam Member

I fit just about all of the requirements for PNES, especially normal EEG and MRI. But my doctor says that I have tonic-clonic epilepsy, so I am going with him.

November 10
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