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10 or more years ago someone told my parents that I probably grew out of epilepsy cause there wasn’t any seizures documented for 7 or more years. I was diagnosed with epilepsy when I was 7 years old and eventually it was diagnosed as nocturnal so I don’t really know when I have them. Unless they are possibly a grand mall seizure
If you have what they call childhood epilepsy and you were diagnosed bellow the age of 10 and your current age is bellow 23 then yes there is a chance you can but once you are out of this range it is… read more
Wow no, I have to force feed myself. I never have the willing to. Water and coffee, man I wish I could be more. Sorry man.
My husband is greatly impacted by seizure meds and us on depression meds that seem to do little to help.
I have been taking phenytoin for 56 years, one major side effect it has on your gums and teeth, making them come loose then have them out, I want to let anyone who has a denture made in the UK can claim on household contents insurance to pay for them, I did twice and it saved me £8 thousands pounds plus I'm doing it again.
Hi, LesleyDonnelly, when I first started taking phenytoin 56 years ago my dosage was 600mg a day, now I only take 300mg a day with one other AED, what is your dosage?
I love mine and it come in handy so many time. Even just to track so I can show my doctor
I would take to your daughter’s doctor and see what you can do to get her one
In my personal experience… read more
I’m only in my 30s but I’m exhausted with the seizures. And some happen on nearly the same day/wk every month. For 2 weeks I am somewhat seizure free and appear like a perfectly healthy woman. But then the last week of the month arrives and I am roiling in cluster seizures. I never complained about PMS until I learned it causes those nasty hormonal seizures. Now menopause couldn’t come any sooner…
I have recently come across catamenial epilepsy and it seems to be the one I have..Since October I've started clobazam whilst on my period,I was having auras every month and since starting this I've… read more
I am testing all week and have to be on sleep deprivation 6pm to 6am. Got to the hospital today at 8am. Wife awake. Will they wake you up or a beeper go off? if you fall asleep. I know they will be watching.
The surgeries that I've had and side effects I've had over the years. It has screwed up my sleep patterns. I'm always sleeping it seems like.
Have you checked to see if your seizure meds side effects may have started Tinnitus?
I have three different types of seizures. The one that scares me the most are my absent seizures because I do things I don't know I'm doing and can't feel the pain when I hurt myself till after I come out of it. I put both hands on the burners of the stove and had to go to the burn clinic for three weeks. last year I put my arm in a skillet burnt myself so bad I spent 8 days in the hospital and had a skin graph done. it's still amazes me that I can hurt myself so bad like that and not yell out… read more
I use to get an aura or odd feeling before a seizure but now I get nothing. I really wish I had my life like it was before I had my brain tumor and all these seizures after that
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