I have a small cooler with frozen water bottles that I change daily, add wash cloths and a touch of water. Too much water or towels cause the cooler to get stinky. I’m on the go similar. A frozen wash… read more
Hi guys,
I'm not on any medication at the moment for my tonic clonic and grand mal seizures.
I'm wanting to speak to my Dr about maybe starting Topomax.
Has anyone been on it? Any side effects? Does it help stop seizures?
Did you take topomax in conjunction with other seizure meds or on it's own?
Thanks heaps.
I Was on Topomax and it had some side effects that were tolerable … Stay strong in time you might be thankful 🙏 🙏
How does it differ from epilepsy treatment plan?
I've been also diagnosed with psychogenic non epileptic seizures. PNES is more with the mental aspects of having epilepsy. Such as different therapys, CBT therapy, goga, meditation. PNES is… read more
Since I've moved to Australia I've been taking generic keppra and lamictal. I took the same medicine in the USA, but I'm feeling some intense side effects from the generic medicine here. My friend that's a pharmacist said it could be from fillers that are used in the medicine. I'd pay for the name brand but it's very expensive. And then the stress from the financial strain can cause a seizure. Anyway, could there be something in the medicine that I'm not aware of?
All of my meds are in generic my insurance will not paid for brand name
My wife is living with epilepsy and I am so scared to death of losing her. I would like to know if there is anything we could do, or is it something that's inevitable?
I would say when for some reason the seizures can not be controlled, no matter what they do
I have found lately that after a seizure I am so much more sensitive to criticism and to well basically anything emotionally draining.
Am I the only one?
I'm hoping this is normal!
I feel you
How does anyone who is a full time parent get by with epilepsy and the fear of having one by yourself with just your child. I have grand mal and partial seizures. I'm to scared to have another child because I'm scared I shouldn't be a mother because of my epilepsy. I've recently also had brain surgery. So I have had a lot of help since my son was born. It's hard to feel like a mother
Is anyone else in this position or know how it feels? My parents help us but they are now in their 70's. They… read more
@A MyEpilepsyTeam Member I wasn't worried about my Pregnancy or my Son having the same Condition that I have b/c at the time my Doctor was in the Houston Medical Center which has some of the best… read more
i want to know as much as possiable about it they r talking about doin this on my daughter
What is your question about it. I might be able to answer it for you. My name is Manny Gomez nice to meet you. I have one in me right now. I just had my 3rd one two years ago. I am supposed to get a… read more
Can anyone suggest a good seizure diary app compatible for iphone? Thanks
What I do is I put notes on my phone. This way I can find my notes and write them down when I see my doctor. My doctor can keep my notes in my file and have a record of what is going on in my head.
I am back on the dating scene and am curious when should I tell the guy I am dating about my Epilepsy? and how do I approach the topic?
I have not been dating for awhile due to other health issues but now feel ready to start dating again. I am also vision impaired and where that is quite obvious and explains away the reason I do not drive I feel a bit unsure of when and how to approach about my Epilepsy. Is it something I should mention to them right away?. I don't want to scare the guy… read more
@A MyEpilepsyTeam Member not sure who you are speaking to when you ask why post a link everyone can't get to. I dont see any link in anyone's comments.