Sponsored Content
Learn more about treatment options for partial seizures
Read more >
Quick Links
Resources
About MyEpilepsyTeam
Powered By
Please Show Support For The Australian Epilepsy Project By Signing Digital Support Board!
The Australian Epilepsy Project https://epilepsyproject.org.au/ is competing against 9 other projects for government funding. It is a popularity contest between illnesses for this funding
Because epilepsy is an unseen illness, it doesn't have a high profile like many other conditions and needs all the research and treatment help it can get! If you are in Australia, email your MP to support it and Greg Hunt, Health Minister as the website requests.
My previously healthy son had his first… read more
Technical Terms
Does anyone use technical terms when talking to your doctor?
Such as aura or grand mal or partial seizures.
@A MyEpilepsyTeam Member Absolutely! After all, as we have discussed on multiple times, it is really difficult to tell when many of us get dementia because the combination of Epilepsy and the side… read more
Did I Suffer Just From Auras, Or Did The Epilepsy Medication I Was On Keep Me From Having Tonic Clonic Seizures.
I had a grand mal seizure, at the age of 6 or 7. I had a horrible headache prior to my episode, but no aura. I was seizure free until age 12 or 13, when I experienced the same type of headache, followed by a grand mal seizure. I was put on Phenobarbital with Dilantin, which took for about 10 years. I experienced another grand mal seizure a few months later, while I was hospitalized for an appendectomy. I hadn't been given my epilepsy medication. I was put on Tegretol in my mid 20's. I didn't… read more
@A MyEpilepsyTeam Member generalized seizures are the full brain and the 2 types that are in that are grand mals and absence or as I grew up calling them petite mals. I've had them since I was 5. The… read more
What Is The Difference Between A Seizure Disorder And Epilepsy?
Thank you, @A MyEpilepsyTeam Member, for another possible non-epileptic seizure, a stroke
Unfortunately, a stroke is very dangerous. Lost my wife, Sandi, to repeated strokes and finally a massive… read more
Clarification
I've seen the phrase gelastic seizures on here I know terminology changes all the time eg grandmals=tonic clinics , absences - = petimalsl but I'm not sure what these gelastic seizures are Thanks
The HH tumor is close to the pituitary gland. It controls mood swings as well as many other things in the brain. I have had 3 surgeries and have been seizure free since my last one June 15, 2018. But… read more
If You Have The Choice To Hide Your Epilepsy... But Don't... Could You Please Comment?
I'd love to pick your brains on why you decided to do so and how your openness has been received. I'm committed to helping people with epilepsy who now hide it to "come out of the closet." Knowing your experiences could give me the education I need to succeed. Thanks!
It's definitely tough sometimes, but I try to be empowered by my condition. I know not everyone has to deal with chronic illness or disability, but for those of us who do, take pride in the strength… read more
Has Anyone Else Noticed Sounds As A Seizure Trigger?
I have noticed one of my triggers is audio related (answering of a cell phone for instance or when I call someone and it starts ringing) as opposed to visual triggers. Has anyone else noticed this? Lights flashing do not bother me at all but certain pitches and sounds can trigger an aura for me... typically involving cell phones.
It's mainly smells that set me off
Seizure Specialist
What happens when you see an epileptologist for the time?
@A MyEpilepsyTeam Member. Check and see if your insurance may cover your state college hospital. Many colleges have epileptologists .
Has Anyone Here Experienced Status Epilepticus? It's When Your Seizure Lasts More Than 5 Minutes.
I'm on frisium (clobazam) to treat it. Was on phenobarbital but doc took me off because it changed my personality. I only remember having 2 in my life.
I had 1 that lasted 15 min. in the basement
Do You Know The Old And New Names For All Of The Epileptic Seizure Types?
https://www.epilepsy.com/what-is-epilepsy/seizu...
The the link above will take you to page the Epilepsy Foundation created on their site, and activated it in December 2016 to explain the new classifications of the Epilepsies and all of the epileptic seizure types by the International League Against Epilepsy (ILAE). The LIE-- which is included in every statement from the ILAE and by too many modern doctors is that these changes were made for the Epileptics and their families, as well as, the… read more
this is my devence... yes, the 'lobe' is your brain but my frontial lobe has many uses (speech, motor, talking, ect). that and when i was diegnoed, thay called it a partial seizures.