I wish my mom and society understood what a seizure feels like. Numerous of times I have heard my mother tell me how much it has scared her over the years and that she is just looking out for me. I'm thinking to myself who the hell wants to feel what I feel. It's a oncoming feeling that makes me want to tear my skin off the body. Even when I'm not feeling well I refuse to tell her and Richie to prevent the 1000 questions that are expected. Tired of society discriminating against people like me and assuming we cannot do there job. Newest thing jobs are doing is asking a person if he or she has a disability. Why should I and everyone else feel obligated to answer something personal or irrelevant to the job. As a person living with epilepsy I'm tired of being judged. I'm like everyone else just looking to live normally amongst society. Is that too much to ask?

I wish everyone could understand:

1. All actions during seizure activity are not intentional or aimed at you specifically!
2. After seizures I lose my appetite, quit pushing me to do something I can't at the time!
3. Medications make you tired, very moody, & lose motivation! Try to be more understanding 'cause if I seem mean, I'm just not myself it's the medication talking.

If people could just be more compassionate & understanding that life is harder on people w/disabilities, it would be such a relief rather than just judging or assuming your making this stuff up!

I wish they could be inside my head for just one minute and everything would make sense. The meds change you, make you feel icky and moody. Some days are great and some are really bad....we have no control over that.

I wish my family understood what it's like on this side of the seizure. I have to hear how scared they were and how my bleeding tongue freaked them out or they were so afraid when I started turning blue etc... I'm like, yeah, well you should feel how my body is aching right now and I can't eat because my tongue is sore and I don't want to roll out of bed because my body and head hurt so much. But I try not to say much because I don't want to seem like a baby. I've been going through it since the age of 12 and what would I be like to whine about it every time? Cry baby! My husband especially doesn't get it. He acts like as soon as my eyes open I should be myself and jump up and start taking care of the kids and doing everything I normally do.

I wish my family understood how hard it is on my body everytime I have a seizure. Also, that it takes a few months after a bad one for my brain to recover.