Connect with others who understand.

Sign up Log in
Resources
About MyEpilepsyTeam
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I'm Afraid Of The Side Effects Of Epilepsy Meds. Am I Making A Mountain Out Of A Mole Hill?

A MyEpilepsyTeam Member asked a question 💭
San Francisco, CA
September 10, 2015
View reactions
A MyEpilepsyTeam Member

I was diagnosed over 20 years ago but been having seizures for over 30 years. I have been on topamax, Dillton, keppra, tegratal, many more for over 15 years but nothing worked the seizures still happening so about 4 years ago I said I was done, no more MRI every 6mos and no more pills so I quit and my eyes opened up. My seizures never stopped but I saw the world in a different light. All the time I was on those pills I was a different person, I was angry bitter person who was hard to be around. Even if I just meet you I would find something to not like or be mad at u. I hated the world. Then one day I did a lot of reading after years at just doing what doc. Say and said I was going to stop all pills and see they were not stopping my seizures anyway. After I got all out of sytem I saw the light and happiness. I would rather be happy with seizures than a miserable lonely lady on a bunch of pills that didn't work on me anyway

January 10, 2019
A MyEpilepsyTeam Member

Anyone that feels uneasy about their medicine, talk
to your Doctor & have him explain what the "side effects" would be. Usually
you can find a "different medicine," if the one your
using has "negative side effects!"
Each medicine works different with each person.
I would advise you to take;
"what you like, or feel comfortable with!"

April 16
A MyEpilepsyTeam Member

No, but its a matter of finding meds that suits you, and finding that safe spot. I say people need to live there lifes to the fullest. Just don’t do stupid things that can endanger others, like not taking your meds.

February 26, 2023
A MyEpilepsyTeam Member

No matter 'what medicine(s) U take; ea.
of us may have side effects!
What helps 1 doesn't
help the other person.
Some people like me
can take several meds
with little or no side affects.
Someone else in my family gets very sleepy
just taking "a baby aspirin!"

November 18, 2018
A MyEpilepsyTeam Member

I've had seizures for 37 years and been on a lot of medicines, and they all have some type of side effect. They just don't effect every person that take them the same way, and for some people they have no side effects they actually help them, and that's because every person's body structure is not the same structure.

October 15, 2018

Related content

View All

Who Is Eligible For VNS?

A MyEpilepsyTeam Member asked a question 💭
Roachdale, IN

Pregnancy And Epilepsy Medicines?

A MyEpilepsyTeam Member asked a question 💭
New York, NY

What Type Of Seizures Does The Vns Implant Helpful For?

A MyEpilepsyTeam Member asked a question 💭
Lewiston, ME
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in