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I'm Afraid Of The Side Effects Of Epilepsy Meds. Am I Making A Mountain Out Of A Mole Hill?

A MyEpilepsyTeam Member asked a question 💭
San Francisco, CA
September 10, 2015
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A MyEpilepsyTeam Member

Anyone that feels uneasy about their medicine, talk
to your Doctor & have him explain what the "side effects" would be. Usually
you can find a "different medicine," if the one your
using has "negative side effects!"
Each medicine works different with each person.
I would advise you to take;
"what you like, or feel comfortable with!"

April 16
A MyEpilepsyTeam Member

I was diagnosed over 20 years ago but been having seizures for over 30 years. I have been on topamax, Dillton, keppra, tegratal, many more for over 15 years but nothing worked the seizures still happening so about 4 years ago I said I was done, no more MRI every 6mos and no more pills so I quit and my eyes opened up. My seizures never stopped but I saw the world in a different light. All the time I was on those pills I was a different person, I was angry bitter person who was hard to be around. Even if I just meet you I would find something to not like or be mad at u. I hated the world. Then one day I did a lot of reading after years at just doing what doc. Say and said I was going to stop all pills and see they were not stopping my seizures anyway. After I got all out of sytem I saw the light and happiness. I would rather be happy with seizures than a miserable lonely lady on a bunch of pills that didn't work on me anyway

January 10, 2019
A MyEpilepsyTeam Member

Yes you are don' worry òf side effects much ĵust contact doc.if you believe you are having one. But don't worry much about them. I say that because some side effects may be there but less then 1% chance to occur. I know this because I have been on experimental medicine in the past and it has thousands of others on it. They have everybody to keep notes on anything they believe changed since start. Each note taking is written down as a side effect. You take care and have no fear in the powerful possibility of success💪! TAKE CARE💯

September 29
A MyEpilepsyTeam Member

Yes, maintain communication with your doctors, possibly keeping a journal to track connection between meds & foods with emotional/physical symptoms. I wish my doctors had warned my family of possible side affects also, because sometimes I just didn't understand how different I was on meds, especially Keppra. My relationships suffered because they thought it was me responding with agitation and frustration, when actually it was my meds changing me. I was back to myself after changing to Briviact. Every med is different for different people though, continue looking for the right one for you!

September 26
A MyEpilepsyTeam Member

It's understandable, being afraid of side effects of medications since sometime a side effect can be severe. Yes, some side effects can be severe. One thing many people don't look at the possibility of the side effects. Some side effects are very high to happen such as drowsiness, other known as tiredness. Which is a side effect of most meds out there. Also, side effects severe such as liver disease on some med out there, but very extremely unlikely. The way they find the side effects is if something happens surprisingly happens to someone on the med while it was an experiment being done on thousands of people, for years, to get pass the DEA and become legal. The people on those experiments have to tell of any lil change occurs while on it. Even simple things like the changing of type of movies watched. It could be something 1 out of 1,000,000 it has to be taken down as a side effect. You can find out what the chance of a side effect is to happen to you from a medication by the doc subscribing it, doing research on the computer for the percentage of a chance, or the pharmacist where you get med also know. So don't get to scared of a side effect, unless done research on it. Do you worry about side effects of watching tv? One of them are decreasing of eyesight level over time of watching TV. That is a side effect from start of watching just extremely low nothing to worry about.

February 14

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