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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anyone Else Suffer With Insomnia?

A MyEpilepsyTeam Member asked a question 💭
Cardiff, UK

Hate not being able to sleep, unsure if it's my meds or not because as far as I know I've always had insomnia from being a baby. I'm on lamotrigine and keppra. Thanks x

January 28, 2016 (edited)
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A MyEpilepsyTeam Member

Something to think about is that it might be – Prodromal: prior to a seizure symptom.

January 29, 2016
A MyEpilepsyTeam Member

My understanding that most people with epilepsy have insomnia. My insomnia coincides with my menstruation with headaches which in turn causes seizures.
See if there is a pattern for you?

January 29, 2016
A MyEpilepsyTeam Member

Ooo me me me ! Because of it I've become a major NIGHT OWL . I blame some of it on the old way of doing EEG's. I had to stay up for a full 24 hrs. , before my appointment time at the neurologist. I've done it at least 3 different times for sure. On my kid's school days, I stay up until they are on the bus. Then I go to bed.

January 29, 2016
A MyEpilepsyTeam Member

YES ! 24/7 . I'm alway the last one in bed. On school days I stay up until my kids are off to school. On the weekends I just stay up until my body starts shutting down.

May 14, 2017
A MyEpilepsyTeam Member

I suffer from insomnia badly, it is common for people with epilepsy to suffer from insomnia. I do not currently take any medication for my epilepsy so it's not a medication side effect for me. I've had insomnia for 15 years now and I have bad spells (which I'm going through now) but I also have some periods where I can sleep with help of medication. I take amitriptline (not sure on spelling) and it works for a week or two then stops for a few months, I go up to 6 nights before I get a migraine through no sleep. Sometimes I can sleep for an hour or two max but that's it. I work in the day and going to work without sleep is a killer. I don't sleep in the day but feel sleepy all day yet come 8 or 9 at night I'm wide awake until time to get up for work. Because of my epilepsy they are reluctant to give sleeping tablets but lack of sleep can also be a major trigger in fits.

Speak to your dr to see if they can find something to help you with sleep as lack of it is awful.

May 14, 2017

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