Connect with others who understand.

Sign up Log in
Resources
About MyEpilepsyTeam
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Stay Away From Fycompa. That Medication Is Evil

A MyEpilepsyTeam Member asked a question 💭
Plano, TX

I started taking Fycompa and boy it turns me into a grumpy a-hole. It also makes me so dizzy it feels like I just got off an amusement park ride. I'm talking to my doctor to see if I can stop taking it. But stay away..Worst. Medication. Ever.

February 3, 2016 (edited)
•
View reactions
A MyEpilepsyTeam Member

Never heard of it! Tegretol, as jksk81 said can work for some. It depends on what kind of epilepsy you have. I'm on lamotrogine, which really dosen't have too many side effects for me, mostly lucid dreams, mild acne which is tolerable. Really bad dandruff though. Instant relief head and shoulders or you'll scratch like a dog. But no mood issues. Keppra? I turn into a mental case. Tegretol works better for partial seizures. I was on it as a child. But it gave me a lot of adverse effects from screwed up teeth ,wrecks your bones and changed my eyecolor.It's an old drug and does work very well for many.It really depends on your system.Do watch your bones though. Just run some ideas by your neurologist. Good Luck.

February 27, 2016 (edited)
A MyEpilepsyTeam Member

Keppra made me very irritable. Everything seemed to make me angry!

March 8, 2016
A MyEpilepsyTeam Member

I am currently am on fycompa and am doing fine. I am on fycompa, vimpat, and keppra. I have been on lamictal, and it stopped being effective. Clonazepam was evil. My son was wondering why I was mad all the time. All of these medicines have a side effect. How you react to it could be different than how I react. Use your own judgement for what's best for you. Good Luck.

August 9, 2016
A MyEpilepsyTeam Member

Talk to your Docter about Tegertal xr.

February 4, 2016
A MyEpilepsyTeam Member

There are several meds to try have you tried Tegertal XR, calazpam, or topamax

March 8, 2016 (edited)

Related content

View All

Opinions On Fycompa?

A MyEpilepsyTeam Member asked a question 💭
Oklahoma City, OK

My Neurologist Has Now Changed Me From Clobazam To Fycompa. Has Anyone Noticed Any Drastic Side Effects To Fycompa?

A MyEpilepsyTeam Member asked a question 💭
Northern Ireland

Starting Keppra

A MyEpilepsyTeam Member asked a question 💭
Glen Campbell, PA
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in