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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Do U Remember Ur First?

A MyEpilepsyTeam Member asked a question 💭
Hudsonville, MI

Does anyone remember the first seizure u had? Mine was March of 2008, i wad in band and then fell flat to the ground having a big grand mal. No need to answer if u dont remember or dont want to share.

February 7, 2016
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A MyEpilepsyTeam Member

I don't remember it, but have heard it so many times that it has become a false memory.
Walking into my mom's bedroom, I called out to her. She heard my voice and knew that it wasn't 'me'. Mom ran to me caught my head in her lap. Her training as a nurse took over and she kept me in an open space so that my body wouldn't hit the wall or the leg of the bed. After the seizure, I 'woke' groggy, but aware of who she was and where we were. She kept me on the floor and called my dad to tell him what had happened. After she explained everything, my dad's response (to a registered nurse) was "Are you sure it was a seizure?"
That's where the language used in becomes very colorful and the memory becomes one we can all sit around and laugh at.

February 8, 2016
A MyEpilepsyTeam Member

Middle of a spelling bee in 7th grade, I was told I was yelling " say the word"

February 8, 2016
A MyEpilepsyTeam Member

I don't remember my first seizure, but my parents have told me about it. I was 1-2 yrs. old. My parent had laid me down to change my diaper. I went from moving and squirming to my body going limp. Then they said that I turned blue. Shortly I started moving again.they took me to the hospital and that's when they diagnosed me with epilepsy.

August 18, 2017
A MyEpilepsyTeam Member

I don't remember the first time because I was a baby and now at 62 >I have had epilepsy all my life and I have had so many why try to remember. To me it's just another day to me.

August 17, 2017
A MyEpilepsyTeam Member

I don't remember my first seizure but if I wanted, I could get the story from my mom and dad. I was 1 almost 2 years of age

May 15, 2017

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