I so understand. I'm a mom to twin girls. It's never ending. I trained them 911 calling. I began that at 3. They understood telephone numbers by then. I took some time but how I knew it paid off is they dialed 911 one evening it was only us three at home. They were able to get me the help I need during my grand mals by 5 years old. I also have an emergency contact number list hanging in my home... It contains the number of my closest relatives the girls are comfortable talking to. They are 7 now and are learning more about my seizures every day

I have a now 5 year old son. I was a full time mom when he was under 2yrs old. Me and his dad split when he was 2. I'd have maybe 10-20 seizures a day when I was caring for him. I'm lucky enough to have an aura, tho it is short lived like 1 second long. So if I was holding him I had to quickly put him down. Or if I had a seizure with him in my arms I guess having complex focal aware seizures comes in "handy" cause I was still able to understand and keep him safe even through my seizure. During my seizures I've been known to tackle people 2x my size. But when I'm holding something fragile, it's like a switch is flipped and my body knows that I CANNOT break what I am holding. I've had a seizure while holding my son as a newborn, holding baby animals, holding glass items. But if you are strong enough my body won't care it might tackle you if it's a bad enough seizure 😅 hope this helped and maybe brought a giggle lol

It is very scary and stressful i have a 1 year-old daughter and my husband is gone alot with work. There's been many days of fear worried that you might hurt baby from having seizure. It's super hard to deal with but I've never let epilepsy run my life more than it already does. Just take a deep breath and keep moving forward. When u feel upset just look at your baby and the love you have will help to keep moving. Feeling like a bad parent does happen because of the guilt of this disease. If you ever want to talk about this stuff im here

Hi Melissa!
I am a mother of two beautiful children! The best way I found of dealing with the fear of having a fit(I also have grandmal) in front of them was to explain to them what it is and what they should do if it happened!
When my daughter was three I woke up afterwards and she was sitting on my stomach and stroking my face! They still scream when it happens, which is good in a way because it attracts adults attention!
I hate having a fit in front of them but that's something we can't control! They are very resilient as well as protective!
You don't need to worry, you are his mother and always will be! He is part of you and loves you very much, no matter what! You can look after him!
I wish you all the strength and positivity that you will need to raise your child/children!
Hang in there!

I tried my best to teach my 2 children what to do in case Mommy 'falls down and spits' but it's very hard for children to understand and most times neighbors used to hear them screaming and knew I had a seizure. When they were older I taught them how to phone my husband when I had a seizure. It's very hard with young children but it can be done. Hang in there- kids grow up! B🌹