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What Emotions Do You Have After Realizing You Have Had Another Seizure?

A MyEpilepsyTeam Member asked a question 💭
Lakeville, MA

For example, after it was confirmed by my sister that I had a seizure (I was talking to her and stop mid-sentence and went silent for a period of time all of which my conscious mind was not present) with a powerful aura before it, I was angry and frustrated with myself. Of course, a flaw in my character, also makes me feel guilty for "having let down my neurologist" by having the seizure. I "sensed frustration with me by him on Tuesday" that I cannot achieve long-term seizure free status with… read more

October 22, 2016
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A MyEpilepsyTeam Member

John... If you are being made to feel guilty or uncomfortable for having seizures from your neurologist you need to communicate this with him... There is no reason you should be made to feel this way and if it doesn't change... John you gotta find a new one he is unfit... I'm truly sorry about you having to feel this way

October 22, 2016
A MyEpilepsyTeam Member

We all get frustrated with them. Your doctor gets frustrated with him/herself at the meds not doing the job. Not/never you. I've gotten frustrated with myself when I went for along time without having a seizure and then I have one, it's not your fault.

October 23, 2016
A MyEpilepsyTeam Member

I always want my Mum trouble is she died in 1976 xx

October 23, 2016
A MyEpilepsyTeam Member

When I find out I have a seizure in my sleep I tell my boyfriend no I did not and I am so upset and frustrated and not knowing what I did or not do he says I pick at my clothes I get up with my head turning from side too side I play with door handles and he has too try too guide me back too bed and he said I fell too the floor once and he said are old neighbor came up once and I was in are kitchen talking too her buy are cabinet on the floor but he said I was mumbling my words I don't remember a thing i get so so upset with my seizures I wish they had a cure for them I had my seizures from a head injury which I fell off a bed when I was three and smashed my head on a bed rail

October 23, 2016
A MyEpilepsyTeam Member

Because I'm unaware of when I seizures I not as emotional. Although there are many times when my family and friends will alert me . A lot of time I won't be leave them but in the back of my head I know it's true so I guess I go through a form of denial or unbelieving and a form confusions. But not the type of confusion we normally get from the seizure. Ithe confusion is linked with the denial . So when someone tells me that I seizured, I feel those emotions because I believe that I was still alert. When I have a cluster of seizures , it can make me feel exhausted, depending on how many I had. If I was in public and had one I may be slight embarrassed, but I don't let it get to me. I just ignore the people who are giving a stare , get up and walk off like nothing happened, hoping I can make it to my destination without having another.

October 22, 2016

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