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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Difficulty Thinking Of Words

A MyEpilepsyTeam Member asked a question 💭
Huddersfield, UK

Do any of you have difficulty thinking of certain words sometimes. It's as if they're 'on the tip of your tongue'. Then a couple of minutes later you think of it/them

January 9, 2017
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A MyEpilepsyTeam Member

I do all the time. I also say the wrong word sometimes. It is frustrating but those people who know me are great and just wait for me to find the word (which sometimes makes me feel more pressure) and as for using the wrong word.....well that can be quite amusing and has caused quite a bit of laughter over the years.

January 21, 2017
A MyEpilepsyTeam Member

Yes i do. I have been working with the same people for 6 years but i still forget their names. I can watch a movie today but a month later i will watch it again then i cant remember anything that happened in it or maybe 6 months later i cant even remember watching the movie. It feels like i have Alzheimer's disease.

January 29, 2017
A MyEpilepsyTeam Member

I didn't realise until recently that this is part of my epilepsy. It gets very frustrating for me at home but at work I can get to the point where I'm just over people and when they laugh at me

February 20, 2017
A MyEpilepsyTeam Member

Yes, sometimes I have to ask what we were talking about. That's alright with friends who know I'm epileptic but when it's not it can be difficult. My worst times are when I have had a few fits in a short time. That's when I really can't talk, what I try and say and what comes out are very different. But I know without the medication it can be really, really bad.

February 1, 2017
A MyEpilepsyTeam Member

My speak is impacted massively some days I struggle to sting words together and understand what's been said to me what I call my brain in a go slow , which causes anxiety and panic.
Iv been epileptic 45 yrs now and was granted DLA indefinite and other day hot the dreaded pip letter they don't concider these things and the impact they have

January 21, 2017

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