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How Do You Deal With The Emouins Of E?

A MyEpilepsyTeam Member asked a question 💭
London, UK
March 17, 2017
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A MyEpilepsyTeam Member

I TOTALLY agree Stephan! It breaks my heart when I see the terrified looks on the faces of those who witnessed my seizure. It also scares me to lose my memory for awhile. I had a strange one 3 weeks ago (have had 3 like this in 29 years). Started with a blood curdling scream with eyes wide open my husband said. Convulsions were horrible and scared him terribly. The pain I felt was also horrible 😨 I didn't even know my own name for awhile, nor his or our children's.... Praying I NEVER have another one like it. It could be worse though and I praise God for His blessings. My prayers are also with you.... All of you!!!

March 17, 2017
A MyEpilepsyTeam Member

no warning, I feel tired and sleeping..I hate it...no memories at...the only way that I know that I had a seizure is...when I open my eyes and see my wife next to my bed..and my tong is sore..bitten....I'm afraid what this do to my body and mind...how much can brain handle before I'm complete disabled.

March 18, 2017
A MyEpilepsyTeam Member

I feel bad for the people who witnessed the seizure it terrifies them. Me it's just the time to recover worse if I fall and injure myself. Not being aware and memory comes back slightly.

March 17, 2017
A MyEpilepsyTeam Member

I've lived with Epilepsy all my life and learnt how to cope. Some things took longer to cope with than others. All the struggles we experience, is now part of our life. You don't have to like it but you also don't want it to take you down into depression either. My number one rule that I would remind myself of , is " that I control my life, not Epilepsy.

March 24, 2017
A MyEpilepsyTeam Member

Admit an aura does forewarn me of a seizure. Some times this gives a chance to concentrate on an alternate subject which can reduce or possibly minimize the seizure. It definitely helps in memory. However, seizures in my sleep are not as controllable. The sore tongue and/or wet side of face, basically saliva, does let me know of the seizures. Headaches, like migraines, do last like all day as today. Do get the feeling, I should have concentrated, while falling asleep. It's a feeling of frustration, after Bev and I were out with friends for a wonderful night. May God be with all of you😐

March 19, 2017

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