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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anyone Notice Any Food Triggers (allergy Or Non-allergy)?

A MyEpilepsyTeam Member asked a question 💭
Orlando, FL

Knowing what triggers are really help with coping with epilepsy. Surely I avoid them best I can... but think I'm still musing a lot of them.

What are some of yours?

I know persevatives, additives, excess caffeine and heavily vibegared food are the biggest for me.

I do have a citrus intolerance (mainly with lemon) that makes me dizzy and very sleepy.

Eggs seem to bother me but not allergic.

Foods with high fat like hamburger (restaurants never seem to bother me, guessing cause they… read more

May 17, 2017
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A MyEpilepsyTeam Member

I have been vegan for years and it has been very beneficial to my seizure disorder. A couple weeks ago, some joker made my latte with cows milk and swore that it was coconut milk. I technicolor projectile vomited 3 hours later... once you stop eating dairy, don’t play games with it. That stuff is poisoned liquid that comes out from a different species....gross....and Milk from other animals will make you have seizures. It is a major trigger for seizures but we’ve been told to drink it

May 27, 2019
A MyEpilepsyTeam Member

Hello All 🙋‍♀️💆‍♀️
Everyone is individual correct. There is no right and no wrong. Everyday is a struggle for us. We have to just try to eat what we like and want for that moment. If a bad symptom occurs than avoid for the next two wks. Then if your caving is still there. Try again moderately.
For example. Watermelon. Had it and it was the worst Epilepsy day for me. I than stopped for two wks. Tried again one piece this time not four lol. And there was no episode. Same with; Honey, butter, chocolate, red meat, I am surprised everytime. It's a hit and miss kind of life we living with Epilepsy episodes.
Hope this shed some awareness.
Good Day Friends.

March 4, 2021
A MyEpilepsyTeam Member

Alcohol causes seizures for me also caffeine!

November 2, 2019
A MyEpilepsyTeam Member

A couple of years ago I began consuming more SOY. Just a couple of weeks into my SOY adventure I began having multiple complex partial seizures, daily. As well as an increase on the tonic clonic version. I talked to my doctor , who just wanted to prescribe more drugs. I plead with my doctors to “research the reason” prior to just handing out these prescriptions. On that note...I began my own research and found that SOY can increase your estrogen level. I have catamenial epilepsy, which is a hormonal catastrophe. I chose to cut SOY out of my diet and within a week, give or take, my life went back to “normal”. Good luck on your journey.

July 15, 2019
A MyEpilepsyTeam Member

For me, I'm sensitive to foods with too many carbs/sugar, processed foods, and having too much fruit at once. I began the keto diet a few months ago, and my seizures have gone down dramatically! Keto is tough to stick to, but I love how I feel less anxious and having less seizures! I

I'm also sensitive to drinking alcohol or too much water. I've read that some people have issues with drinking too much water as it can dilute the meds. Caffeine is not a huge issue for me, but I still avoid it.

June 24, 2018

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