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Does Any1 Get Fed Up Of Explaining Yourself To Outsiders?

A MyEpilepsyTeam Member asked a question 💭
London, UK

Does any1 get fed up of explaining yourself to outsiders?

June 11, 2017
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A MyEpilepsyTeam Member

Yes I get so tired of it. I work in a hot kitchen. They don't understand how the heat effects me to have a sezuire.

July 4, 2017
A MyEpilepsyTeam Member

Yes and no.
Yes, because so many people can be ignorant of the condition.
No, because people need to be made aware of the seizures and daily life living with epilepsy and who better to tell them but the very person with epilepsy.

June 16, 2017
A MyEpilepsyTeam Member

Nope I love it then I can educate them at the same time

June 11, 2017
A MyEpilepsyTeam Member

I do but a few of them have taken a first aid course, but like most of us my memory isn't good. The thing that gets to me a lot is when I'm asked what happened during the seizure, how the heck am I supposed to know that.

June 13, 2017
A MyEpilepsyTeam Member

Absolutely. It's exhausting, especially when the person honestly doesn't care. People think I must be mostly okay because I have partials and not tonic-clonic. The whole "well you don't look sick" idea. It's frustrating and can be enraging for sure.

July 7, 2017

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