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A MyEpilepsyTeam Member asked a question 💭
Newcastle upon Tyne, UK

This may just effect sufferers in the UK because the state of the medical system but worldwide opinions appreciated. I find that as each year passes even though my symptoms haven't changed I get to see my neurologist less and less. Maybe they think I am getting better or they haven't got the funds or the number of people with epilepsy and brain disorders is increasing?

September 19, 2017
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A MyEpilepsyTeam Member

I have the same problem, there are more people having sizers and less doctor's. I have epilepsy and more and more Dr. Offices say we don't have a doctor's for that..

September 21, 2017
A MyEpilepsyTeam Member

I only get to see a neouroligist 1 a year and its not even my actual neouroligist its a sub neouroligist. I thinks its because i havent had an episode since 2009 and thats why i wait yearly instead of 3-6 months like before then. I believe its down to how long since u last had a episode like if you where to have more then 2 episodes a week youll get appointments earlier or else a decress or incress on medication to see if you have improved if you have improved then they'll make appointments less frequent that what you normally have.

September 21, 2017
A MyEpilepsyTeam Member

I live in Australia. I see a private neurologist and I can see him whenever I need to. Obviously though I am paying up front - in AU dollars is about $220 and I get back from Medicare just under half of that. Medicare is a thing in Australia every citizen has a right to (subsides medication for everyone, subsidies specialists as examples). Luckily my mum and dad pay for this because otherwise I would have to wait until the public system could see me. While that would still provide good neurologists, the wait time would be longer based on need.

September 20, 2017
A MyEpilepsyTeam Member

The number of epileptic is rising in my view, or becoming more likely to seek assistance. As well, neurologist particularly in the field we epileptic seek is few. One who is not only good at their job but compassionate is hard to find and will have a long list of patients so woth that a bit of a waiting time. Each of my visits with my neurologist spans a rough 3 to 4 months and as of the last visit I may be getting transfer to a "student" of hers. I am not going to complain on the latter as one who is trained in the ways and guided by my current is truly acceptable in my view. But as most all of us have expressed, it is quite common (in my views as a U.S. citizen) to have long periods between visits. As well, some forms of medications have a longer period of truly becoming active, so this in itself is also anither reason for delay in between visits.

September 19, 2017
A MyEpilepsyTeam Member

I agree the times between my appointments seems to be longer, now been seeing the same consultant or 8 years and its as if he knows me now so doesn't need to see me as often x

September 19, 2017

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