How Do You Describe Your Condition To Someone Who Does Not Have It?
When someone asks me, "What does epilepsy feel like?" I describe it as "having an invisible stalker with a TASER" and/or "being controlled by a sadistic puppet master". I also tell people my brain has been "rewired by a drunken technician".
In my experiences it’s so hard to describe anything. I can’t even talk for quite some time after. They can’t see what’s going on inside my head and I can't get a word out to tell them. I understand their questions, but can’t connect my brain to speech to be able to answer them. The one time I tried, I heard the jumble of words and shut up once I realized what I heard. Very frustrating on both sides, I’m sure, since they can never really understand the inside of each of our brains.
I tell people I had a brain fart. sometimes that's how I feel about my brain.
I usually describe it as driving in a car with a foggy windscreen for day to day life and after a seizure I feel like I've done a full body work with my head feeling like it's going to split open. For a partial seizure I can only describe it being similar to being so drunk you feel like you're having an out of body experience. If someone asks if my meds do anything I say I literally cannot remember the last time I didn't feel tired.
I say that sometimes the neurons in my brain have too much electricity and need a way to get rid of it(seizures). Kids seem to really understand that.
Cathryn that is exactly what happens to me. I can hear and know what people are saying just can’t speak back. Get like an intense hot flash and nauseated. About 2-4 every 15-20 days. No meds have worked. On Vimpat now. At my age not sure there is much they can do. Am treated by Mayo Clinic and Georgetown so am in good hands.
? I'm Not Sure How To Put It, But It's A Neutral One And A Curious One Also, This Has To Do With Our Conditions We Have, More Below
As For Letting Society Know About The Condition Of Epilepsy I Have Recently Say 3 Days Ago Seen It On Tv And What Someone Should Do If They
If You Didn't Have The Condition You Have Now , How Would You Describe Yourself Etc, Any Different Or What?