Connect with others who understand.

Sign up Log in
Resources
About MyEpilepsyTeam
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

When Meeting New People, How Do You Discuss With Them About Epilepsy And The Fact You Are Living With It?

A MyEpilepsyTeam Member asked a question 💭
Raleigh, NC

If you want to meet new people and develop long-lasting friendships, how do you discuss Epilepsy and the fact that you are living with it? How soon is too soon to have these discussions with new people?

October 14, 2017
View reactions
A MyEpilepsyTeam Member

Come right out and tell them, honesty is the best. You do not want to have a seizure in front of them and let them find out that way

October 16, 2017
A MyEpilepsyTeam Member

If I were meeting new people , I would tell them right out about my epilepsy. Then and there I would find out if they are going to be a true friend or not. I don’t like be around someone who acts like they're my friend , then when they aren’t around me, they start talking behind my back ( or being 2 faced )..

If I were to tell the person later or they saw me have a seizure, when we are just becoming good friends, I would be heart broken. At least you would find out in the early stages whether or not the want to be friends with you .

October 24, 2017
A MyEpilepsyTeam Member

i tell most people. All people that I'm involved with as well as My bosses and colleagues know I have a diagnosis of epilepsy but I don't tell anyone that I'm continuing to have seizures, even my neurologist. I have to be careful with what I say to him as he catches on very quickly. I have noticed that he won't often ask me different questions so I don't have to give answers I don't want to which suits me fine I know it's strange but we both work in health and he knows that if I say anything about the seizures he will have to record it and then there could be very detrimental affects on my career etc. yes it's sounding even more strange! He knows me and I know him. He leaves the decisions of what I will disclose up to me

October 16, 2017
A MyEpilepsyTeam Member

It depends on how frequent your seizures are. My last seizure was three years ago after forgetting to take my meds, and so I don't worry all that much about having them. I'm knee deep in epilepsy advocacy these days, though, so I bring up my condition quite naturally if someone ask "what do you do?" If I felt that my seizures were more likely to come on randomly and frequently, I'd flat out tell people soon, but as dispassionately as possible.

While safety is the most important factor, you don't want to over dramatize the effects your epilepsy may have had on your personality or other elements that define you. You own your epilepsy. It doesn't own you.

October 20, 2017
A MyEpilepsyTeam Member

I just come out and tell that person, I have something to tell you so you know what to do to help me. Then I explain I have epilepsy and what the person should when i have a seizure and how they could recognize my seizure. Then they always have lots of questions.

October 15, 2017

Related content

View All

My Family Keeps Telling Me The Reason I Keep Experiencing Fatigue Is It Is Due To A Little Bit Of Weight I Put On Since I’ve Been Out Of

A MyEpilepsyTeam Member asked a question 💭
Hayes, VA

A Neutral? Do You Seem To Be Ok With The Condition We Now Have And Live With? Kinda Know What To Expect And Happen And Maybe Learn About?

A MyEpilepsyTeam Member asked a question 💭
Englewood, CO

Its Hard For Me To Talk About My Epilepsy . Ive Always Been Ashamed Of It . Howw Do You Deal With Emotion Side Of Epilepsy

A MyEpilepsyTeam Member asked a question 💭
Independence, VA
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in