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Has Anyone Seen A Neuro-endocrinologist? I'm In Canada, And They Seem Rare (if In Existence At All).

A MyEpilepsyTeam Member asked a question 💭
Stephenville, NL

Women could benefit from a neuro-endocrinologist (partic those who have catamenial seizures). If I could get a specialist to understand my stomach, I think my seizures would be much better.

November 2, 2017
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A MyEpilepsyTeam Member

They 'do' exist, but I have been unable to find one. I know Dr. Alan Jacobs is a neuro-endocrinologist, but also that he lives in the US (not Canada like me).

I've a friend in Alberta who's a neurologist. She also tells me they exist, but I'm unable to find one in Newfoundland & Labrador. Heck, I'm struggling to see my epileptologist these days (we've only 1 epileptologist in my province)!

I also know that CLAE (Canadian League Against Epilepsy) is having a meeting in NL in September. It will be a true test to see if there are any in Canada. Many specialists 'will' be there - including neuro-endocrinologists if they're in Canada. I volunteer with Epilepsy Newfoundland & Labrador, so I intend to be there.

I'll try to update this in September!

July 8, 2018 (edited)
A MyEpilepsyTeam Member

For women w/ catamenial seizures, there's a connection to progesterone and estrogen levels and seizures. I often find neurologists know little/nothing about these connections. Also, endocrinologists often know little about the 'seizure' aspect of hormone irregularity. Neuro-endocrinologists would be knowledgeable on each... but they are rare. Unsure if there are even any in Canada

November 3, 2017
A MyEpilepsyTeam Member

This is SO helpful!! My seizures are directly linked to my menstrual cycle, and present in a way that is not at all typical to any kind of seizure my doctors have observed. I had no idea that a Neuro-endocrinologists existed.

April 1, 2018
A MyEpilepsyTeam Member

The pituitary gland is in the brain and this controls most hormones in the body. I have never heard of a Nuero-Endocrinologist didn't even know they existed

November 6, 2017
A MyEpilepsyTeam Member

No, I didn’t know there was such a thing but I’m definitely checking into it. What is the connection with the brain, the endocrine system, and epilepsy?

November 2, 2017

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