Connect with others who understand.

Sign up Log in
Resources
About MyEpilepsyTeam
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Has Epilepsy Affected Your Work?

A MyEpilepsyTeam Member asked a question 💭
Bradford, UK

I'm in the proces of applying for HCPC registration and I need to declare about having epilepsy and my relatively recent seizures - will this impact me getting my registration?
Occupational health have previously advised no lone-working, which would impact my work immensely! Anyone have similar experiences?

January 27, 2018
•
View reactions
A MyEpilepsyTeam Member

I am an electronics technician at a public university (Purdue University). I have been there since 2001. I told my boss at my hiring of my epilepsy and he had no problems with me.

I requested for a reasonable accommodation of having a service dog in 2016. I started the process with HR, but they threatened to fire me because having the dog would limit the types of jobs that I could do. HR stated that I had to secure another job, on or off campus within 2 weeks, or be fired

I had my neurologist write HR a letter stating that I could do the job. HR backed off after they received it.

I think they finally realized that if they did fire me, charges would have been pressed of them violating my rights under the ADA. I had started talking to an attorney regarding HR's actions.

It has been almost 3 years since all this started, but is still a sore subject for me.

February 3, 2019
A MyEpilepsyTeam Member

Octavia:
Unless you told SOCIAL SECURITY when you were diagnose with EPILEPSY
YOU may have a real problem getting DISABILITY.
MY parents never told Social Security when I was Diagnosed and now I
can't get it retoactivelly.

EPILEPSY is a DISABILITY, and we are disabled.
Now some of us may work & some have such bad seizures they can't.

October 9, 2020
A MyEpilepsyTeam Member

I had to quit wrk and file for disability

January 29, 2018
A MyEpilepsyTeam Member

I worked in a doctor's office for about 6 years and they didn't have a problem with me having epilepsy. They were actually understanding about it. That being said, I don't have convulsions, mine are complex partials. And at the time they were somewhat well controlled. Towards the end of that job they worsened and at my last job I was fired because of all the absences that I had because of the times I had called in sick because of the problems caused by my epilepsy. I never told my supervisors at my last job about my condition though.

January 28, 2018
A MyEpilepsyTeam Member

I've been a 911 operator for a few years. I was JUST diagnosed last year with epilepsy and now, my doctor says I can't do that specific job. I was also in the process of becoming a police officer and that;s out the window now. Thankfully they're trying to accommodate me at work but it just sucks.

March 8, 2021

Related content

View All

Edema

A MyEpilepsyTeam Member asked a question 💭
Sioux Falls, SD

Does Anyone Else Have NES/ Dissociative Seizures?

A MyEpilepsyTeam Member asked a question 💭
San Diego, CA

Has Anyone Tried Cefaly?

A MyEpilepsyTeam Member asked a question 💭
Sioux Falls, SD
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in