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Support For Carers Of Epilepsy

A MyEpilepsyTeam Member asked a question 💭
Newcastle upon Tyne, UK

My wife has sacrificed her career and life to look after me and monitor my seizures. It would be nice if the forum had an area where carers could share questions and worries.

July 23, 2018
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A MyEpilepsyTeam Member

I’m a caregiver but find being part of this site very helpful. The posts often provide good info and give me insight. I sometimes post questions and get lots of support.

July 27, 2018
A MyEpilepsyTeam Member

Something that many people want after they have grown old enough don't want to live with their parents any more. A local social group with other people that have epilepsy is something something that may help. The only other thing that may settle a person's feeling that is old enough to move is assisted living. No family living with them?

July 23, 2018
A MyEpilepsyTeam Member

It shouldn’t matter in my opinion. If your wife were to come on , it wouldn’t be much different than a mother who is on , looking for help and support for their child who has Epilepsy.

July 23, 2018
A MyEpilepsyTeam Member

Great suggestion. For our family we just had to figure things out as we went along. Our son is 27 and iin the past it was such a taboo that many did not want to discuss it or let anyone know they were diagnosed with epilepsy. Currently the support group we are aware of is downtown and too far for Steven to want to travel combined with him being a shift worker.
He is just beginning to tell people. Since our move three years ago hasn’t gotten friends here.

July 23, 2018
A MyEpilepsyTeam Member

That’s a good idea!

July 23, 2018

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