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Adding Onfi To My Regimen? How To Handle Tiredness And Work

A MyEpilepsyTeam Member asked a question 💭
Providence, RI

I’m on 1800 mg of Trileptal and 200mg of Zonegran and now we might be adding Onfi to my daily intake 😒

I recently started a new job in febuary which is like 10x more physically demanding than my previous job. I started having seizures and rare symptoms a little over 2 years ago and now working this job I think I underestimated how exhausted the illness makes me or the medication makes me
I have about 2-5 seizures a month that happen only during my menstueral cycle, so the onfi would be taken… read more

August 7, 2018
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A MyEpilepsyTeam Member

Oh wow! Thanks for your answer. I hope not my insurance covers more of it. I can’t afford that. I’ll only be taking it 10 day out of the month.

August 15, 2018
A MyEpilepsyTeam Member

It took 13 years to solve my seizures. They tried every medication. They put in a VNS and helped some. I still take 1500mg of Keppra twice a day but when they tried Onfi it was the miracle drug. I haven’t had a seizure for over three years. It really helps people with partial complex in left temporal lobe . But it’s expensive. I pay $740 a month copay until May.

August 14, 2018
A MyEpilepsyTeam Member

How do you handle that? Do you have accommodations?

August 10, 2018
A MyEpilepsyTeam Member

I’m not on Onfi but my job is very demanding and takes alot out of me. It does cause me to have more siezures.

August 9, 2018

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