Just Really Do Need To Know What Is Going On!!
I myself have a question I have 2 different types of seizures one is the grandmal seizures which luckily I have not have had in quite a while now but in the past few years after being diagnosed with the petit absent seizure the blackouts I have seems to just continue to get worse about 2 weeks ago I had a little over 45 within a week and 25 of them were just in one day so and since benig taken off the medication I was on my nurologist put me on something else and every since then I have been… read more
Terry:
As Epileptics we must learn to speak up for ourselves if something is NOT WORKING !!!!
I've dealt with Epilepsy since age six and when I was old enough I began to tell my doctors
what worked and what didn't work.
I also made decisions on my own also. I used to take 30 MG of Valium daily but found it made
me really sleepy so I discontinued it.
Doctor didn't give me a lecture only asked if I noticed anything from stopping it?
Told him I felt fine without it.
Now I found my "wonder drug" after I threw my first GrandMal in 1969 @ age 15.
The drug was Tegretol and I'm still on it only now take the extended release version.
I take 2/400MG or 800 MG.And I'm GrandMal seizure free for over 40+ years.
DeAnnMagonKennedy:
What drug were you on that you hatted & what was it's name???
You did the correct thing by changing doctors when he didn't listen to you.
I did the same thing after a doctor took me off of a drug that worked for me & that
I had taken since age 15, Once off of it~ I had 9 GrandMals for 1 week !!!
That got the doctor FIRED !
Randy:
I'm going to get a PDR ~ it's the big book all doctors have about medications.
Think it's a good thing to have especially if you have family members who take medications
I'm only taking TEGRETOL XR`800 MG a day now.
Nothing else for Epilepsy. Other medications are for Type II Diabetes.
Also have been GrandMAL seizure free since April 1986.
Last GrandMAL was March 1986 @ age 32.
I'm 64 now.
I was watching MSNBC last night and found out a very interestin factoid:
There is NO STATUE of Limations on ASSULT in Maryland !!!
What that means is that Justice Kavanaugh CAN BE BROUGHT up on ASSULT CHARGES
AT ANY TIME~~EVEN IF HE GETS CONFIRMED !!!!!
Marlene, speak up is right and that I did said it like it was, But I still speak up for all of us for who ever makes a wrongful remark. Iam now 21 yrs sz free ever since I started taking Brand Tegretol and brand Lamictol, Im happy and glad to hear the news your sz free, take care hope you the best
Seizure Monitoring Device
Has Seizure Rescue Meds Been Investigated To Eliminate The Possibility Of Those Meds Making It More Likely To Have Seizures.
Can Anyone Share Their Experiences With Non-epileptic Seizures, How Long You've Had Them, And What Has Helped Or Not Helped?