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Anyone On Trileptal Have Memory Loss?

A MyEpilepsyTeam Member asked a question 💭
Powers, MI
February 1, 2019
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A MyEpilepsyTeam Member

Yes, Missy Carr, I have bean taking Trileptal 1800mg a day for 18+ years. I have experienced short term memory loss over the years. Seizures have contributed to the memory loss as well but I have had, and still experience memory loss. I also experience insomnia, lack of appetite, depression, suicidal thoughts (not attempts but thoughts), lack of energy (probably associated with lack of eating)...all I can think of now.

I have stayed on it because it is the only medication that stopped my nocturnal seizures (that is when I had my tonic-clonic seizures). So those side effects had become my new "normal".

Let me note...the suicidal thoughts were addressed with Citalipram 30mg at night. Just saying my own experience...this may be different, of course, for other people.

February 1, 2019
A MyEpilepsyTeam Member

Hi I've been on combinations of AEDs for 40 years .You name the drug & I've been on it .My short term memory loss is appalling ,I think this & the suicidal thoughts info is on every leaflet I've ever had .Yes ,I'll admit I've had thoughts like yours ,sometimes it's because I can't be doing with the epilepsy side any more I'm a 62 year old grandma ,with 3 grown up kids & 4 small grandchildren ,It breaks my heart that I can't look after them alone,although if my husband's there it's ok If I get troubling thoughts I think about them ( they live close by) & how much I want to see them grow up.Take care x

February 3, 2019
A MyEpilepsyTeam Member

You give me hope😘😘

February 19, 2019

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