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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Had Success With Fycompa?

A MyEpilepsyTeam Member asked a question 💭
Staten Island, NY

I tried it for a short time a stopped because of side effects. I was thinking maybe we didn't give it enough time. All other meds I have tried have been ruled out due to severe side effets.

March 8, 2019
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A MyEpilepsyTeam Member

I have done better with Fycompa. Still have small episodes but not GranMal ones near as much..

October 22, 2021
A MyEpilepsyTeam Member

I take the generics of keppra and lamictal. The third drug added was fycompa. I call it my miracle drug as I call my neurologist my miracle worker. When the fycompa was added I became seizure free. I’m not sure if the outcome was because of the drugs and dosages or because I started on Fycompa. I have many of the side effects that you all spoke about. I was living in a bad mental place. I’ve been seizure free for two years. My thoughts are that I’d rather deal with the side effects than deal with the seizures again.

October 20, 2021
A MyEpilepsyTeam Member

I’ve been in Fycompa for 3 or 4 years maybe more . I haven’t had any trouble with it.

March 8, 2019
A MyEpilepsyTeam Member

Tried it, had to stop it due to side effects.

March 8, 2019
A MyEpilepsyTeam Member

Do you mean literally or cost/approval etc?

March 8, 2019

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