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Does Anyone Ever Feel Like They Are 100% Better? Or Do We Just Feel Like Crap Every Day, Feeling Unwell?

A MyEpilepsyTeam Member asked a question 💭
Newbury, UK

I dont think ive ever felt good about myself because im either in pain, tired or had had the seizure. There is always something bothering me every day, having lots of side effects to the tablets i take

It feels it just me being a low depressing girl that keeps going on.....

March 22, 2020
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A MyEpilepsyTeam Member

It's okay to feel like crap. Feeling sad or having some symptoms of depression dose not mean you are depressed. I am seizure free right now, but that doesn't mean I am fixed and I still have side effects from AEDs and other health issues. You don't have to force yourself to feel good all the time, it's unobtainable to feel 100% a 100% of the time. Sit with your emotions and find where they originate from, and try to make a plan to change the causes. Feeling better instantly is not possible. Everyone has issues and everyone has to find out their own way of dealing with them. You don't have to be satisfied with feeling like crap, you deserve to feel well. I wish you all the happiness in the world. Epilepsy is a very hard burden to bare and everyone has their own way of coping, and it's all valid. I hope this helped even just a little.

March 26, 2020
A MyEpilepsyTeam Member

I never feel 100% and I've come to accept that after a long time after being placed on disability and having to give up my driver's license and right to work and being diagnoses with clinical deppresion everything happens for a reson. I do what I can even though I still fall asleep in the afternoon for a couple of hours or if not some time in the afternoon or early at night and I try to get outside and active if I can and when I muster up the energy or motivation. My meds and countless surgeries haven't help with the side effects. I Just have to remember am still alive everyday to see another sunrise and sunset and a roof over my head and achievements I've done which said I couldn't do and be thankful for what I have although all of that is hard every day it's what I have to do to feel 100% even though I am not.

March 26, 2020
A MyEpilepsyTeam Member

I have had couselling in the past, talking about my epilespy before ans it has helped but hasnt really really made a differents. I am able to work, it is a job that i love so it my happy place where i forget about it for a couple of hours, anywhere else i go i am just feeling down and trapped because of it. The doctors has traumates me a bit about it a couple of years ago making me realise about it all. It affects me a lot now.

March 24, 2020
A MyEpilepsyTeam Member

I think you answered your own question really.
100%
I feel 💯 % better than crap! One problem! I don’t know what it feels like?
So I guess 💯 % of I don’t know is! I feel like 💯 % crap
My official problem solving skills~DOH

March 23, 2020
A MyEpilepsyTeam Member

Everyday I'm in pain but I've learned to beat the pain and not the pain beat me,Prayer, meditation, hobbies these are things that help me everyday I also keep a journal just to see my efforts with dealing with my pain, what I'm eating, am I exercising probably, did I get enough sleep and last did I meditate Oh I can't forget did I help anyone to smile,yes helping someone helps me with my pain as well.

January 27, 2021

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