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I Have Temporal Lobe Epilepsy,

A MyEpilepsyTeam Member asked a question 💭
Ramsgill (North Yorkshire), United Kingdom

I experience the usual dream like feeling, then a really unpleasant chemical smell. It’s very scary I’ve tried explaining to my neurologist and she can’t explain it. Does anyone else experience this? Are they seizures??

September 22, 2020
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A MyEpilepsyTeam Member

I sense a really bad smell every once in awhile. One day I was walking with someone and made a comment about “ that horrible smell” on our walk. The person was bewildered. I was the only one smelling it. I had smelled that same smell before. I asked my doctor. He said I should research “simple partial and focal seizures” in the internet, bc he had nothing to give me to explain it, but that if I was the only one, it could be a type of focal seizure.
I dug around the web, and sure enough it is. Now I ALWAYS ASK Anyone near me,”Do you smell that?” Bc in my case simple partial/ focal/ seizures/ auras ALWAYS precede a grand mal.
Much love and blessings- Jeff

September 22, 2020
A MyEpilepsyTeam Member

Yes, I use to have the same thing.
Deja vu with a metallic taste. A feeling of extreme anxiety would come over me.

September 22, 2020
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member. How odd? Your Dr saying that.Mmmm

September 27, 2020
A MyEpilepsyTeam Member

I have no idea she refers to them as episodes not seizures

September 23, 2020
A MyEpilepsyTeam Member

At times I will have a metallic taste in my mouth. I need to say this why wouldn't a neurologist be able to explain that for you? its very common

September 22, 2020

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