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Does Anyone Have Status Epilepsy That Can Tell Me Some Of Your Signs And What Triggers Yours. I

A MyEpilepsyTeam Member asked a question 💭
Graham, TX

Mine have lasted for a day to 3 days. I get so tired I can barely walk. My eyes get so heavy until they start blinking. Most of the time I can hear but not move. Riding in a car makes me have one. Just wondering about someone else that has status epilepsy.

December 1, 2020
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A MyEpilepsyTeam Member

I also have mood changes from being a shy person to being a telling friends if I liked something or not. Now they get exactly what I think and it's very up & down the moods.

December 4, 2020
A MyEpilepsyTeam Member

I have Epilepticus and when I go to.hospital they keep me in about 10 days and takes me hours to come around. They said to my daughter that I had a cup of coffee but don't remember nothing at all even Neurologist came to see me he said but I was still out of it. I don't know when I'm going to have a.seizure. Don't know a thing for about 6 hours.

December 4, 2020
A MyEpilepsyTeam Member

So even though mine last a long time, I don’t go to an emergency room or nothing. I guess I don’t understand why because I just go in and out most of the time for a day. I do sometimes have some jerking and after I come out of them, I’m very tired and don’t want to do anything. I don’t know what they could do. I have medicine that I take once I loose my energy and sometimes it helps and other times it doesn’t.
I have been reading up on status epilepsy some and understanding it a little bit
More. I know it’s not good to have the seizures that long but I don’t understand how they could help. I have learned it’s better just to lay down, close my eyes and just go through it. sometimes I go completely go out and others times I go in and out but I don’t wear myself out as much by trying to fight it.

December 3, 2020
A MyEpilepsyTeam Member

Yes I do Epilepticus. I don't know what triggers mine. O never know when their coming just come and the next time when o come around is hours later in hospital

December 2, 2020

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