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For Those Of You With Seizures In Your Sleep, Can You Provide Details About How You Feel In The Morning?

A MyEpilepsyTeam Member asked a question 💭
Lakeville, MA

I am asking if you, of course do not have the seizure and fall off the bed. Do you wake up with all kinds of body pain besides an obvious headache? I am just wondering if I have added sleep seizures to my collection because yesterday I woke up with pain in my back (top and bottom and a little sore on left leg). And this morning I am sore all above my waist and both of my legs. And I have never have gotten a sore neck from shoveling snow, or moving furniture, so that eliminates both of them… read more

February 8, 2021
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member I find WebMD okay. This is the much better site for everything to do with medications https://www.drugs.com/

March 1, 2021
A MyEpilepsyTeam Member

You need to talk to a doctor about these experiences. I’ve never fallen out of bed but I do wake up in pain a lot particularly after an active day. I attribute this to age. But I would definitely ask a pro what’s going on, might be nothing but age 🙂.

March 24
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member,
The only way I know I have had a seizure @ night is how I feel on the morning. I will go to bed not sore or stiff, minor headache (the norm (3)). When I awake in the morning my covers are all on the floor, my body aches everywhere, I feel like I’ve been in a fight or hit by a car. Blurry vision, Migraine above a (7), usually have stiff muscles in one of my arms, (usually my right). I have fallen off the bed once and the couch a time or two. I don’t recall how I felt so much as, being surprised and confused as to why I was on the floor. I live alone. I do know I don’t function as well on those days, when I have had a seizure at night. Most of the time I will sleep all day sometimes 2 days. I don’t eat or anything because I’m so exhausted.

November 16, 2022
A MyEpilepsyTeam Member

I have occasionally had nocturnal seizures but it's been a while now.
I always have tonic-clonic (grand-mal) seizures. There are a few ways I can tell if I've had one in my sleep.
I wake up immediately after the seizure has ended and I'll be super confused and disoriented. I also get body pain from my muscles seizing and sometimes I bite my tongue really bad.
Sometimes I only have one symptom, sometimes it can be a combination.
I don't usually have auras but I can usually feel a seizure coming on and get myself to a safe place. The one time I remember having an aura it was deja vu and it was so intense that it made me feel sick to my stomach.

March 19, 2021
A MyEpilepsyTeam Member

Thank you all for your answers! I only had those two mornings in a row that I woke up with the headache and all of that body pain (and have had not any since and do not remember ever having any before this), so I unofficially believe that I have added nocturnal seizures to my collections of seizures.
NOTE: They really need a function on here to list the old and new name of the seizure type and the brand and generic names of the medications when we type in one.
Off course, since they are a non-profit organization with sites for Epilepsy and quite a few other -- you can find this out by researching them on the internet. I did this after the Epilepsy Foundation refused to mention them to people with Epilepsy because they told me that they are profiting in some way off of those of us on here. However, I have yet to find any proof of this on here because I have not seen any commercials and I have not received emails with ads for medical treatments and the like for seizures. H

Have any of you?

March 1, 2021
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