@A MyEpilepsyTeam Member
I do and my headaches can last for up to 72 hours! I started on Levetiracetam (Keppra) and so far my migraines have disappeared along with the seizures. Only time will tell for sure however I have felt that my migraines may be seizures as well (at least most of them.) Part of why I think this is over the years my seizures have changed and when I look at my migraine journal the symptoms I was experiencing are almost identical to what happens at the beginning of the seizures (aura?) I experience now (focal aware to focal impaired to secondary generalized tonic clonic). I didn’t used to think I was having seizures because I wasn’t having motor movements, jerks or tonic clonic seizures like I do now. I didn’t understand about focal aware seizures. I think my migraines are definitely connected to the focal aware-aura description. This has been my experience and I hope it can help. I am glad I have my notes or else I would not remember what I was experiencing with migraines to connect the dots. Xoxo

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A MyEpile...

For children they have a higher chance they will grow out of the seizures. Not saying it happens to everyone but a good chance he will stop having them.

I would work directly with your neurologist on the matter. I stay in very close contact with my neurologist frequently as he is aware of the temporal lobectomy that has caused the chronic migraines to begin and I also have very close communication with the pain management specialist that takes care of the chronic migraines every 3 months with Botox and always refilling the monthly prescription for Ajovy. Lastly, there are times when my migraines will have aura warnings and there are times when they don't and I am just hit straight on with them. Usually it is the weather pattern that brings them on however it can be times when the scar pattern just flips out for no reason and brings on something. It's not as bad as it use to be thankfully due to the medication I have been taking. I keep in close contact with both doctors whenever there is a question coming to mind, I suggest you do the same.

I agree. Are there any active studies being done that we can participate which look at individual cases for solutions?

I talk to *neurologists. Not just one, because I have seen that it can be a guessing game for them. Even with all the tests, MRIs, EEG etc