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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Have You Lost Your Taste And Smell?

A MyEpilepsyTeam Member asked a question πŸ’­
Fairview Heights, IL

About six years ago I noticed several times when my wife would say, "Do you smell that?" and I couldn't. Then I noticed some foods like green peppers and onions that I hated I could go ahead and eat because I couldn't taste it. I did some research and one thing I found is epilepsy and brain surgery were in the list of reasons I could lose these senses. Anyone else notice it?

May 31, 2022
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A MyEpilepsyTeam Member

For me my sense of smell loss happened all of a sudden after a certain seizure then it gets worst after every seizure. Just like my memory loss. My memory was okay when i was first diagnose with epilepsy, then all of a sudden one day after a seizure, that seizure took away my memory.

June 4, 2022 (edited)
A MyEpilepsyTeam Member

My wife has lost her sense of smell, she's mentioned it to the doctor but they can't explain why she should be that way. I'm sure it must be something to do with her form of epilepsy she has.

How many of you have this problem? Do you find it only comes on after you've just had a fit? Let me know.

Be safe
Stephen Greenwood

May 31, 2022
A MyEpilepsyTeam Member

Not to the medicine to toothpaste yes they put me on a para Donnell medic to please a mess worst one because I lost my taste buds with a paradigm toothpaste never go on it again most amount of chemicals in that thing ever I would never want it again I would recommend it either never worst thing in the world.

May 31, 2022
A MyEpilepsyTeam Member

Having epilepsy alone can affect any sense you have you have. Mine has decreased sense of smell from start. But also, anything can change as aging at different speed for everyone. Such as the sense of sight changes, feeling cold quicker, weakening of bones. everything deteriorates over time of use. Just like things do that are used by hand such as bed springs, light bubs, a battery, everything changes over time of use!

February 10, 2024 (edited)
A MyEpilepsyTeam Member

During June 2003 after the pharmacist's error replaced Tegretol with some high blood pressure medicine and for the 3 weeks that followed when I was without Tegretol (my only anticonvulsant at the time), I lost many parts of my sense of taste and a few of my sense of smell. However, this is the only time that I know that this has ever happened -- even after a aura/simple partial seizure barrage or transformation to an aura state.

June 10, 2022
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