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Does Anyone On Here Suffer From Tardive Dyskinesia?

A MyEpilepsyTeam Member asked a question 💭
Orlando, FL

I’ve had weird uncontrollable movements for months that don’t show on my EEG. My seizures still happen often luckily they’re usually partials. But the spasms scare me, i’m always snapping my fingers without realizing and other weird things. So i was just curious if anyone suffered from this and had any knowledge on it because i may bring it up to my doctor. Nothing is being solved

June 18, 2022
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A MyEpilepsyTeam Member

Tardive dyskinesia (TD) is a disorder that involves involuntary movements. Tardive means delayed and dyskinesia means abnormal movement.

June 21, 2022
A MyEpilepsyTeam Member

Hopefully, you will have a good neurologist this time, so when you bring up the details you will be listened too and a conversation perhaps.

Make sure to print out and bring the document with you so you can validate the source.

Hoping and praying that you have a good or great neurologist this time.

June 19, 2022
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member @A MyEpilepsyTeam Member it just didnt show up on the EEG. But the doctor also said some things go unnoticed because of all of the layers under the wires, my hair, skin, scalp. Only my occipital lobe and temporal lobe seizures came up

June 19, 2022
A MyEpilepsyTeam Member

I also agree with Randy
I had arm twitches on an off on a regular basis.
They would come and go every few months.
Since I am on Lamotrigine they have seemed to totally disappeared.

June 19, 2022
A MyEpilepsyTeam Member

Have you considered that it may be ataxia?
https://www.mayoclinic.org/diseases-conditions/...
I was told I had myclonic seizures but when I researched ataxia my symptoms seem to match more closely.

August 28, 2022

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