Hi Have Any Of You Guys Had Temporal Lobectomy Surgery? If So What Is Outcome And Was It Successful
In October 1984, I had a Right Temporai Lobe Resection - same thing I'm sure. The "tip" of the right hippocampus was the "focus" to be removed. On doctors directions, I continued my 4 "E" meds for another 7 months and continued on Depekote for another 4 years "prophylactic." I did experience two pre-convulsive episodes 2 months after my surgery. I have been Medication free for 34years and seizure free since the surgery. I was 35 at the time.
All the Best on your decision.
Thank you so much for asking this question as I’m in the very same situation.Although I love my doctors I don’t want to jump the gun on “the next big thing” I gained a lot of information from this and just appreciate you asking
After approximately 18 years of trying all sorts of medications and treatments to control intractable daily / weekly temporal lobe seizures and approximately monthly grand mal seizures, I made the decision for a 2 week work up ( in 1988), which was followed with a left temporal lobectomy. Basically lived in the Epilepsy Center at the Medical College of Georgia (Augusta, GA) for 4 weeks.
All in all, the surgery was a success, and I highly recommend it as a treatment.
I am still taking some meds, and have very infrequent auras but have been able to live for 35 years in a managed state without the same level of concerns I had before the surgery.
I highly recommend considering the surgery, but review the hospital and Epilepsy Clinic.
I had surgery to remove scarred tissue from the left temporal lobe in April 1987. My last seizure was the day before the surgery. I have been totally off medicine since the end of 1992. The only after-effect of the surgery is my right eyelid is slightly closed which effects my peripheral vision.
I had a lobectomy to my right front in 2008. No meds or concoction of them were controlling my seizures at all. I had one seizure a couple years after. I am still on meds as a precaution, I do have seizure activity still on my eeg's. And feel tingling in my left hand and foot. I'm told these are sensory seizures. I don't lose feeling or black out. I have a cognitive decline since the surgery, my processing has slowed, and my memory is not good either.
Have Any Of You Had Any Experience With Stem Cell Therapy To Treat Partial Seizures Or Temporal Lobe Epilepsy? If So, How Successful Is It?
Have Any Of You Had A Temporal Lobe Resection For Your Seizures?
Edema