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Impossible

A MyEpilepsyTeam Member asked a question 💭
Hanover, PA

i read on google things people with seizures should avoid and i saw that one of things you should avoid is your time of the month [period] tell me how can anyone expect that its literally impossible so basically i'm doomed to have a seizure because i get my time of the month what does this mean?

February 24, 2023
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member , My seizures aren’t as frequent or severe as some peoples however I don’t have auras & so I don’t always know I’ve had a seizure unless I notice something is odd or someone witnesses it like my Mom or stepdad who I still live at home with. I don’t think I ever felt like when I had a seizure was due to my time of the month. So I don’t think every female is effected with having a seizure around their cycle. In October 2021 I began peri menopause & the hot flashes come & go & can be awful & can interrupt my sleep but luckily for right now they have stopped. So don’t worry, if you haven’t experienced any seizures all these years around your cycle, I wouldn’t start worrying after reading an article about it but you could talk to your doctor like the other team members suggested & if you feel it’s necessary then you could ask for something to help you that one of the team members mentioned. Good luck. Your friend in Texas, Becky

February 24, 2023
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A MyEpilepsyTeam Member

I mean I already had a baby but it wasn't from birth control honestly I'm not sure how I didn't have a seizure my whole pregnancy especially since they had to cut back my medicine on top of taking more medicine for gestational diabetes and the chances of getting pregnant on birth control is like 1% out of 100 so I'm not worried about something like that My time of the month is so irregular from birth control that I only get it once a month and then I don't get it again until it next month I guess which is fine I guess but I appreciate everyone's support and answers

February 26, 2023
A MyEpilepsyTeam Member

I been getting my time of the month for years and never had seizure idk if it's because my seizures are controlled by medicine or if it just hits you at a certain age

February 24, 2023
A MyEpilepsyTeam Member

I have Catamenial (monthly) seizures. I would just have aura and Déjà vu but didn’t know it was seizures. When I hit menopause I started having absence seizures that other people noticed. That exposed the seizures, I have been having them for at least 35 years. I can’t drive now and am trying to figure this out. I want to connect with people that experience the seizures I do.

January 2
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member I have catamenial epilepsy every single month during ovulation and period I have cluster seizures since 2010 😞 best thing to try is progesterone only pill.

February 27, 2023

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