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Guilt

A MyEpilepsyTeam Member asked a question 💭
Pittsburgh, PA

Has anyone felt a sense of guilt because their child developed seizures?
I remember feeling terribly responsible when my daughter developed seizures. I thought it was my fault somehow.

March 27, 2023 (edited)
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
Thank you for the hug.
HUG to you

April 23, 2023
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
...and everyone isn't born with it either (as several individuals have said on here.)
My oldest sister told me at least one doctor thought a high fever when I had chicken pox could have caused mine; but that has never been proven. (There weren't vaccinations back then.)
How are you feeling today?

April 11, 2023 (edited)
A MyEpilepsyTeam Member

That's very good. And I don't believe that seizures are hereditary. My son is going to be 13 yrs. old this year and my daughter who'll be 21 yrs. old has never had them. My parents never had them and even my grand dad who I called "My POP POP" died at the age of 120 yrs old (even in his old age) never had them. So no I don't believe it is passed down through the genes.

April 11, 2023
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member , I hope by now you’ve realized that it wasn’t your fault that your daughter started having seizures. My Dad had bad grand mal & so his were much worse than mine. His didn’t start till after my parents were married & they don’t know what caused them. I want to say my Mom said that maybe one of Dad’s Uncles had seizures also but I don’t remember. But my seizures didn’t start till I was in the 2nd grade & I hit my head on the monkey bars but no one knows for sure if I got them from that, my Dad or both. Growing up I had petit mal seizures, now known as absence seizures but now I have complex partial seizures & nocturnal seizures where I have seizures in my sleep. My seizures aren’t as frequent or severe as some peoples however I don’t have auras & so I don’t always know I’ve had a seizure unless I notice something is odd or someone witnesses it like my Mom or stepdad who I still live at home with. Being that my Dad & I both had seizures, I think it brought us closer together in a way cause when we’d see each other or talk on the phone we’d ask each other how our seizures were doing, like if we’d had any. Dad passed away from cancer in 2012. But never think it was your fault. I can’t explain why she developed them, but look at it this way, you can both travel on a journey that is familiar to the both of you & you both can somewhat relate to what the other is going through & so you understand how the other person is feeling & what y’all need, like rest after a seizure, etc. So you both can work as team to support each other on your journey with Epilepsy. Sending Thoughts, Hugs, Smiles & Prayers. 🤗💜🤗 Your friend in Texas, Becky

March 27, 2023
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A MyEpilepsyTeam Member

Yes , at first. We didn’t have enough information about seizures. As we have gone through years of my daughter having seizures , we found out she has had them since birth. The more information we have gained about the seizures , the more we know I should not feel guilty. We now have the opportunity to help her have the best quality of lifein as many ways as possible . The Lord helps my daughter and our family daily .

March 29, 2023

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