Hi , John, being that you worked in hospital , even a hospital Library, it upsets me , finding out that they took don’t fully understand Epilepsy.

I Would assume they have a mandatory CPR class , it would be nice if they taught Epilepsy First Aide too.

Instead you get harassed, criticized and accused, from your co -workers. And your boss follows suite, thinking you’re not getting along with a staff. If you were made to take this class on how to get along your coworker should of also taken the class.

Overall , I’m sorry for what happened.

I like to try and talk about Epilepsy. When I went to interviews for a job , I always let the person interviewing me know about my Epilepsy. To alert them my condition. From that point they can decide to hire me or not.

Wen I meet new people and I’m going to be around that person, do the same. If that person wants to understand it better, then I’ll go deeper into the subject on Epilepsy. It a good feeling when someone wants to understand it more.

@A MyEpilepsyTeam Member, sorry i don't have anything to say because everyone has covered all i wanted to say. I thought i was going to put my 2 cents in but not this time. Darn it! 😞

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A MyEpile...

I don't hide my condition, I let people I know about the condition I have, I do so at my call, I know that there are some people in the world that understand the condition, and some that don't, I don't let it get to me, If I have a seizure outside my house, not much I can do but go through it, but I don't worry about others and what they think. If they help that's ok if not I understand,

You ask if it feels like the whole world is against epilepsy. I often feel like crawling in a hole, but then God comes along & reminds me that even though it seems the world is against me, He is there w/ me

(John 16:33)
"I have said these things to you, that in me you may have peace. In the world you will have tribulation. But take heart; I have overcome the world.”

-- After that what can I say?

Purina in 2008-2012 had no issues as I had a few while I was there & all were concerned not only about me but about others as well. It was a time when in 2009 as the keynote speaker for the United Way Campaign I spoke to the company about my epilepsy it's role in my life, how the UW helped & most of all my faith life & how God got me through everything & bc of Jesus Christ, no matter what happens to me on this Earth, I have a place w/ Him in Heaven. A place where epilepsy & all illness does not exist, all is good & all I have to do is praise God. The VP of HR pulled me aside & asked why I spoke on the topic as he was amazed why anyone would speak on epilepsy, as it was taboo? To his question I answered, That's my life, the campaign was on how the UW had helped me & my family. But he was also very greatful I did as he said no one else does.

Purina 2022/23 Is a whole different story, I'd say a 180 degree about face, & known to be very political.
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Randy & John
Hospitals can be both the best and or worst places to work. I was in Lab Medicine @ Washington U. Med school in St. Louis (WUMS) / BJC health system 1988-1998. I'd say 99% of the people I worked with were great about it, I still
remember my 1st seizure there. my boss & friends experienced me hopping all around my lab, when I snapped out of it, they asked me about it & I told them about my epilepsy & they were good. They were & are still "family". It's a family I miss, we were there for each other, it was a Great place to be back then. In 1996 I took an appointment at BJC in 1996. Then in 1998 I went blind. My staff was great about it, & very concerned as again we were family. In fact I found a card yesterday that they sent to me when I was in the hospital, & one from my boss on the WUMS side of things. My boss on the BJC hospital side, as I shared a while back tried to get rid of me as soon as it happened, she also couldn't deal w/ my seizures, so I resigned & moved on BJC is still known to be very "hard" on the non-physician people.

My staff & others would walk me through the medical ctr. to my meetings. The executive brass & senior management at both WUMS & BJC never had issues, the issue arose with my BJC boss & co-hort.

More recently, I experienced an increase in more companies being afraid & terminating me after they found out.