@A MyEpilepsyTeam Member thank you again. Your comment helped a lot. I think I get random focal seizures and auroras. Currently my records say I have unspecified seizures.

Mentioned Users

A MyEpile...

I mainly get electrical and numbness down the left side of my face which goes all the way to my toes. This is part of my focal seizures. Im sorry your neurologist has done that thats awful its such a complicated condition support and guidance is needed. I hope you can find a doctor and/or specialist nurse who is able to support and guide you but in the meantime this site is great. It's wonderful to be able to talk to people with the same condition as no one really understands what it's like unless they've experienced it themselves. If you have anymore questions I will do my best to help. I hope you have a wonderful day too.

@A MyEpilepsyTeam Member they definitely are very interesting. I’m amazed at how intricate they are. Even when they don’t work at their optimal level, they are amazing. Do you get the swelling and electrical feeling? Have the doctors told you what it is 🤔 ? My neurologist just kind of wrote me off. Sorry so many questions. I hope you have a fantastic day

Mentioned Users

A MyEpile...

I dont get cold I get intense burning ...brains do weird things

@A MyEpilepsyTeam Member thank you very much. I appreciate that. I have been thinking about making an appointment. However, I am not a fan of my current neurologist. And I really don’t want to see hear that it’s nothing. I need a new neurologist who actually listens

Mentioned Users

A MyEpile...