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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How Many People Have A Vns And Do You Feel It Works For You At All?

A MyEpilepsyTeam Member asked a question 💭
Rochester, NY
October 14, 2023
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A MyEpilepsyTeam Member

I have had a vns for about 15 years in the beginning i had a robot voice every time it turned on and i could always feel
it turn on but now my voice changes a little bit but i feel like the vns does nothing for me

October 19, 2023
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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
That’s why I got rid of my VNS. The vibration made me cough and changed my voice whenever it turned on. It didn't help me with seizures either.

October 19, 2023
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A MyEpilepsyTeam Member

I have a combination of a VNS and a DBS as they work together in my case. Yes, I do feel they benefit one another. The hope was to lower medication but at this point in time something isn't quite right. Will talk about it later.

October 17, 2023
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A MyEpilepsyTeam Member

I had vns surgery just over one month ago and I feel it has improved my focal seizures I have temporal lobe epilepsy it is sore on throat for the first couple of weeks talking but I just tried my hardest not to and my speech has improved greatly hope this helps

October 17, 2023
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A MyEpilepsyTeam Member

I have heard many patients having sore throats after the VNS. After I had the VNS the sore throat seemed to come about weekly and it is still taking place after other week just about. I have been keeping myself hydrated with water and also using organic cough drops as needed to avoid a lot of medication.

October 19, 2023
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