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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anyone With Right Temporal Lobectomy

A MyEpilepsyTeam Member asked a question 💭
Myrtle Beach, SC

In January I am scheduled to have a temporal lobectomy on my right hand side I was wondering who all has had this procedure done before and how it went

November 27, 2023
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A MyEpilepsyTeam Member

I hate to tell you that because yours is scheduled. I went to a great hospital. Apparently, he was the best neurosurgeon in the area, but all I have are scars and screwed up eyesight. Then I was in the hospital for a month afterward. I had no worries beforehand. I'm just being honest. It's worked for many others though. ❤️

November 28, 2023
A MyEpilepsyTeam Member

I was really surprised, you know ‘brain surgery’ is always thought of as such a daring thing. But I was out of the hospital in four days and recovering at home only until I had healed enough to have the staples removed. Which was only a few weeks. 🤕 Twenty years later, I’m sure they’ve made some improvements to the surgery. Maybe fewer staples (I had 69).
One weird thing that I’ve forgotten to tell anyone, when I had my first brain freeze from eating ice cream, I was completely confused. It felt very different! My wife and I decided that this was due to nerves being cut-but there’s no scientific confirmation for that.

November 27, 2023
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A MyEpilepsyTeam Member

I had it in 2002, so much has changed since then. I was 32 at the time. I had great success as far as complex partial seizures go. I still take Tegretol and recently had my first tonic-clonic in 20 years, but I drove from 2002 - 2019 and that was wonderful! I had my surgery in January, so that’s a good month for it. Best of Luck!!

November 27, 2023
A MyEpilepsyTeam Member

Thank you! Also if it makes you feel any better my neuro said the exact same thing. I had an eeg in 2016 and 1 seizure was on the left side so they shut operation down. Only in September did they catch all coming from the right side and agree to surgery

November 29, 2023
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A MyEpilepsyTeam Member

I've been to 3 brain surgeons and the front left side can't be operated on as they say that there is a 75% chance of the surgery killing me or leaving me brain dead the rest of my life. There's still a chance of operating one day. Good luck..

November 28, 2023
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