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Just Seen The FDA Warnings About Levitiracetam And Clobazam. I've Just Started Taking These And Keeps Getting A Skin Rash 😵🙄Anyone Else ?

A MyEpilepsyTeam Member asked a question 💭
Northumberland, United Kingdom

https://www.fda.gov/drugs/drug-safety-and-avail...

December 8, 2023
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A MyEpilepsyTeam Member

It could be a allergic reaction some people get with the medication or a interaction with another medication they are talking. I've been on clobazam for years and never had a problem with it and I've never started to get or have ever gotten this rash that they've been talking about.

December 9, 2023
A MyEpilepsyTeam Member

I just told by Neurologist. In memory clinic. I am only taking a high dose of Xcopri and having partials while she was with her. She lower dose of xcopri and add Onfi ! Is grateful for knowledge she got her training at UCLA! I was an EEG Tech. At UCLA-30 years ago! She asked of Dr.’s I knew we laughed! It was a great visit!

January 24
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member Sorry I'm not sure what you mean, are saying you're actually getting the skin rash? Or are you just worried it will happen? Because just to let you know the skin rash issue they are talking about isn't really a side effect it's considered a medical emergency that must be treated asap. It can happen with a lot of the other meds as well. It is a very rare event though. I've never had it happen.

December 8, 2023
A MyEpilepsyTeam Member

Thankyou for your welcome message Toni. 🥰
I have put up with the rashes for many years, and have learned to tolerate them, and accept that I need to have a supply of loratadine handy for whenever the hives break out !
Have added you to 'my team' - hope you don't mind 😉 ❤️

March 8
A MyEpilepsyTeam Member

Had skin rashes in swirls and total beet red skin off with 6 meds. . Welcome to the group!

March 7

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