I viewed what you posted. People have no idea how this condition drastically reduces the quality of one's life. As you stated, doctors need to know each potential affect. Thanks for posting

Marilee, Please share it. I found a web site about rare diseases. I shared it with my Doctors. Somehow if we could all get this to our Doctors, it would help.

This looks like a pretty complete source of information. I like the organization by topic which makes it easier to use. Thanks for posting it Leslie!

My Oldest Cousin Who is 6 years older than Me, didn’t know I had Epilepsy until I traveled to NY visit Brother and Him. During conversations I mentioned that Epilepsy since age 13. He had no idea that I have it. It was 2017

Thank you Lesliel I appreciate this and plan on sharing it.