@A MyEpilepsyTeam Member
I have had a Neuropace (RNS) for 4 or 5 years. I had several EEG’s and surgeries where doctors wanted to see my seizures but I never would have a big one so they were all a waste. The RNS not only helps control my seizures but it also records my brain activity when I’m having a seizure. Whenever I have a seizure or aura my mom will touch my head with a magnet and that will highlight the spot I had a seizure. Every night, before I go to bed, I turn on the RNS monitor and place a wand on my head. It will download and seizure information. When it’s finished I hit “Send” and all of the information goes to my doctors. When we go see the doctors they put a wand on my head and can see everywhere I had a seizure or used the magnet on a monitor. Most of the lines are level but when they go to a spot I had a seizure the lines get bouncy ——-wwwwwwww——. They write down whatever information. Since I still have some seizures the doctors have risen the amps several times. To do that they just place a wand on my head and do some adjusting on their monitor. I never feel anything with the RNS.

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A MyEpile...

I looked it up and apparently it is the RNS device that a lot of individuals on here write about having one implanted and their thoughts about it.