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How Often Does The Type Of Seizures You Have Change Throughout Your Epilepsy Journey?

A MyEpilepsyTeam Member asked a question 💭
Minneapolis, MN

It hasn't even been 2 years yet and I've had grand mal, then nocturnal, now absence. Getting tested for autoimmune and now doctor wants to test me for MS too.

March 9
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A MyEpilepsyTeam Member

I always had grand mal and absence seizures too. Worsened after the Menopause and stress is my major trigger….
Now, when I am ill, for instance, twice with Norovirus, I’ve had Psycotic episodes. I’d rather not have those…..

March 9 (edited)
A MyEpilepsyTeam Member

I have experienced mostly every type of seizure. Now they are just scaring me more. I don’t lose awareness but I have numbness on my right side. This are also signs of a stroke. But I have absence and my gmals are at night.
I think they are changing due to menopause and more scar tissue in my brain.

March 9
A MyEpilepsyTeam Member

Luckily I have only had tonic-clonic seizures, but I know that could change at the drop of a hat.

March 14
A MyEpilepsyTeam Member

I have had Grand Mal, nocturnal, petit mal, tonic clonic, generalized and focal/complex-partial.

March 10
A MyEpilepsyTeam Member

Everyone’s journey with Epilepsy is different.

With myself not much changed , starting from age 2. Everything stayed the same, through the age of 10 . I was my seizures were still the same ,but my seizures patterns may change when trying a different medication. Sometimes there were a few medications that just didn’t work well at all and my Seizures got worse.

By Sept of 1998, I had the Left Temporal Lobe brain surgery. It helped decrease my seizure frequency from sever to mild and moderate seizures. But , it didn’t reduce the amount of seizures.

Tried the VNS it didn’t do much . I was still having the same amount of seizures.
But by August of 2022, I got The DBS put in . It has help reduce my seizures down Al lot. So I still have seizures. It seams to have reduced my moderate Seizures too . I still have them but not as much. They are mostly mild.

That’s my experience through my seizures and Epilepsy

March 9 (edited)
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