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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Been Diagnosed With Autoimmune Epilepsy?

A MyEpilepsyTeam Member asked a question 💭
Westminster, CO

I would be interested in connecting and finding out more about treatment specifically IVIg.

April 22
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A MyEpilepsyTeam Member

I actually was just diagnosed. Was just told it is a newer form, last I could find online was new in 2017 and 4 forms of treatment. The first 2 have been denied by my insurance so my doctors office is taking on that battle with them. I'm waiting to hear the results. I know there are different variations but I was diagnosed with that when I keep testing positive for GAD 65 in blood draws and then the lumbar puncture.

April 23
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A MyEpilepsyTeam Member

Look it up at Mayo clinic. They have videos on YouTube. It's caused when a person has several other autoimmune diseases.

April 23
A MyEpilepsyTeam Member

Thanks

April 23
A MyEpilepsyTeam Member

What is autoimmune epilepsy, I looked up online and found other symptoms and names, but not that. Thanks.

April 23
A MyEpilepsyTeam Member

Best wishes ❤️

April 22
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