Does Anyone Else Have Seizures They're Awake Through? How Do Yours Feel?
Yes; however, I only remember the few first seconds of the onset. It feels like an overwhelming sense of deja vu, confusion, and intense fear.
I've started getting awake seizures. They last a couple minutes but the confusion afterwards lasts for 45 -60 minutes. I've had six smaller seizures where it was triggered by music and I have enough awareness still where I can stop the music before the seizures get too bad.
I have them . But they are mild enough to no do anything to me anymore.
When I was younger I would have cluster seizures through the day ,that it would knock me out until the next day.
I use to have seizures when it first started "adult onset epilepsy " The first Dr I saw said I didn't have epilepsy. Back to the hospital I went 3 days later with 3 grand mals and that hospital sent me to a new Dr who is still AMAZING
@A MyEpilepsyTeam Member
I have auras where I get an odd taste in my mouth. My doctors do find seizure activity on my RNS when I have an aura. I used to even stare and drool. I could hear others but Iād just daydream and drool.
I Have A Few Questions If Anyone Would Like To Listen....
If Had Seizure Or Seizures And You End Up Falling Asleep Should Someone Tell Them To Get Up And Wake Them Up Or Let The Person Sleep It Off
Does Someone With Epilepsy Remember The Things They Said/did During A Seizure/PNES?