Connect with others who understand.

Sign up Log in
Resources
About MyEpilepsyTeam
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Anyone Else Have Seizures They're Awake Through? How Do Yours Feel?

A MyEpilepsyTeam Member asked a question šŸ’­
Laredo, TX
April 26
ā€¢
View reactions
A MyEpilepsyTeam Member

Yes; however, I only remember the few first seconds of the onset. It feels like an overwhelming sense of deja vu, confusion, and intense fear.

April 27
A MyEpilepsyTeam Member

I've started getting awake seizures. They last a couple minutes but the confusion afterwards lasts for 45 -60 minutes. I've had six smaller seizures where it was triggered by music and I have enough awareness still where I can stop the music before the seizures get too bad.

April 27
A MyEpilepsyTeam Member

I have them . But they are mild enough to no do anything to me anymore.

When I was younger I would have cluster seizures through the day ,that it would knock me out until the next day.

April 26
A MyEpilepsyTeam Member

I use to have seizures when it first started "adult onset epilepsy " The first Dr I saw said I didn't have epilepsy. Back to the hospital I went 3 days later with 3 grand mals and that hospital sent me to a new Dr who is still AMAZING

April 26
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
I have auras where I get an odd taste in my mouth. My doctors do find seizure activity on my RNS when I have an aura. I used to even stare and drool. I could hear others but Iā€™d just daydream and drool.

April 26
Sponsored Content
Find out more about different epilepsy treatments Read more >

Related content

View All

I Have A Few Questions If Anyone Would Like To Listen....

A MyEpilepsyTeam Member asked a question šŸ’­
Waynesboro, GA

If Had Seizure Or Seizures And You End Up Falling Asleep Should Someone Tell Them To Get Up And Wake Them Up Or Let The Person Sleep It Off

A MyEpilepsyTeam Member asked a question šŸ’­
Chorley, UK

Does Someone With Epilepsy Remember The Things They Said/did During A Seizure/PNES?

A MyEpilepsyTeam Member asked a question šŸ’­
Camden, AR
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data Policy and Privacy policies.Your privacy is our priority Lock Icon
Already a Member? Log in